August, September and October update
August, Sept and Oct update:
As noted in my previous blog, July was really a bad month for me. What surfaced in the lab tests was a HSVi 1 IgM "detected." So we are somewhat suspicious that the falling apart in July could have been HSV 1 related. It was not VZV, CMV or EBVi (possible cross reactions to HSV 1). It was also not HHV-6, Coxsackie B3 or B4 or Cpni. The IgM was "detected" a second time at this same lab so we know it was not an error.
My antibody titers to Cpn IgAi have dropped significantly from >1:256 to 1:32. So the rifampin and doxyi are doing their job. I am staying on those antibioticsi for now. Dr. S suggested that I not add in flagyli or anything else at this time.
August was a recovery month from my July meltdown. September was my best month ever in the 8 years of my illness. I had 18 days that were a "6" and one day that was a "7" (10 is normal). During September I had 3 back to back trips that I weathered fine.
October, unfortunately, has not been as good as September. The doctor is trying valtrex instead of acyclovir to see if we can better control the HSV 1. I had a headached when I started the valtrex, but otherwise I'm doing OK on it.
My best to all,