Anyone who is doing chelation for heavy metals?

I would like to hear from others who have done chelation. What are some of your side effects? and what agents have you used?

We are learning how heavy metals are playing a role in chronic infectionsi. It would be helpful and interesting to hear from others on their experiences and reactions.

Thank you..

 

 .

I did it. I suppose it was EDTA of some kind. No impact that I could detect on recovery time from exertion.

Ron

On CAPi for CFSi starting 01/06 (NE Ohio, USA)

Began rifampin trial 1/14/09

Currently: on intermittent

I  made a huge blunder on making the forum topic. If anyone can help me deleate the multiple posts, feel free to do so.

I know everyone has important topics and they have all bewen hijacked by my error.

Feel like fog is taking over today. Thank you for your understanding.

started Wheldon capi 4/21/08 for Cpni, CMV, EBVi, CFSi. Cap hold 4/09vascultis. Restart 9/09 with Dr.Powell, restore gut, 4000 D3, supplementsi,  Pos. Bartonella and Babesia, Rifampin 600 mgs and Biaxon 1 gram. 

Bonnie, The up take of forum topic and comments by this website is very slow today. This can make you think that your button did not work and cause multiple posts!  I know I have done this same thing more than once in the past!    Louise
  • CAPi(TiniOnly): 06/07-02/09 for CFSi<
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support
  • <
Horses12, Done, done and done! Smile  

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

I started chelation for lead last summer with OSR. My immediate reaction was to vomit the morning after. I think it was from lead pulled out of hiding. A few months ago I started EDTA. For years I had vocal chord problems. My neck felt like it was strangling. The problem improved with CAPi and surgery, but within a few days of starting EDTA, I had major improvement with my voice. It returned to normal.

minocycline, azithromycine, metronidazolei 2007-2009, chelation for lead poisoning, muscle pain, insomnia, interstitial cystitisi (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (no longer hurt)

 Janice, Thank you for sharing your reactions with lead chelation. I am having very stollen lymph nodes in my neck and my throat is sore. I was wondering if this could be a sign of the metals being pulled out of tissues. I also feel exhausted and irritable.

How much EDTA  are you taking?

Thanks, Bonnie

started Wheldon capi 4/21/08 for Cpni, CMV, EBVi, CFSi. Cap hold 4/09vascultis. Restart 9/09 with Dr.Powell, restore gut, 4000 D3, supplementsi,  Pos. Bartonella and Babesia, Rifampin 600 mgs and Biaxon 1 gram. 

What is EDTA? and where to you get it from? Thank you

Mphs, TN. CFSi, hypoT (Hashi), adrenal fatigue, hormonal inbalance. right arm neuropathy-getting better. cpni, myco, EBVi, CMV, HHV-6. Capi began in 6/07. NACi 2400mg, minoi 100mg bidi, biaxin 500mg bidi. cytomel, flagyli bid continuously.

I had my 'Silver Fillings' removed first and then used DMSA while I was on CAPi program. Not sure what the side effects were since I did it in combination with the CAP program. I've had a successful outcome in approximately 20 months. Did the chelation therapy with retesting periodically done by Doctors Data lab.
Beth -mom of 2 beautiful girls one who I suspect is positive CPNi;RAi 33 yrs tested positive for CPN; Supp for 12 mos; CAPi started 10/6/08 Doxyi 100mg,Azith 250mg MWF, NACi 1200mg 10/20/08 Doxy 200mg, 10/27/08 NAC 2400mg ; pulse #2 12/05/08

Blankena,

 Did you use the DSMA for the entire 20 months? And what heavy metals did you show elevations on with the test?

 Thank you.  

started Wheldon capi 4/21/08 for Cpni, CMV, EBVi, CFSi. Cap hold 4/09vascultis. Restart 9/09 with Dr.Powell, restore gut, 4000 D3, supplementsi,  Pos. Bartonella and Babesia, Rifampin 600 mgs and Biaxon 1 gram. 

Bonnie, I take 625 mg of Wonder Laboratories EDTA once a day.

minocycline, azithromycine, metronidazolei 2007-2009, chelation for lead poisoning, muscle pain, insomnia, interstitial cystitisi (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (no longer hurt)

Janice, Thanks for the reply. Is the EDTA hard on your stomach?

I feel very dizzy and my stomach gets upset with the acid. I have been tying to alternate with the InterfasePluse and the straight EDTA.

Did you have any symptoms when you first started?

 

I am also starting a EDTA bath to help with heavy metal removal.  It must be working.Surprised

started Wheldon capi 4/21/08 for Cpni, CMV, EBVi, CFSi. Cap hold 4/09vascultis. Restart 9/09 with Dr.Powell, restore gut, 4000 D3, supplementsi,  Pos. Bartonella and Babesia, Rifampin 600 mgs and Biaxon 1 gram. 

I haven't had stomach trouble with the EDTA. At times I am the troll queen, but I think I may have needed to be to be heard. My gums are still blue in patches.

minocycline, azithromycine, metronidazolei 2007-2009, chelation for lead poisoning, muscle pain, insomnia, interstitial cystitisi (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (no longer hurt)

I am the Troll Queen with the die off from the Cpni.   it is less so now as I take alot of moppers, chitosan etc.  I have done some heavy metal capsules for cleansing & other cleanses as well that were general.  I was going to look into chelation in the US but haven't been able to do that yet.  I think every little thing matters once you are ill.  Even the slightest of levels can upset the apple cart.  I believe in addressing everything you can as it will all help out in the long run. 

peace

r

CFIDSi/ME, FMSi, MCS, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsi+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyli/day-5 days<

Janice C....I am not happy to hear you had vomit problems with OSR... BUT.... I am glad that it wasn't in my head...lol.... Once a month I heaved my guts out. This is one yucky way of getting rid of Lead...hehe... I stopped after I figured out it had to be the sulfer. Take Care...
jodie

I did 7 months of fairly intense chelation, mainly for mercury, but also lead, cadmium, and beryllium. I think I picked up these metals working next to a coal-fired power plant for 6 years.

For the chelation, I used a finely ground chlorella product called NDF, which is non-prescription. It was effective for removing mercury, but didn't seem to be having any effect on the lead, so I added prescription EDTA suppositories the last 3 months.

It was a sickening process - no heaving but diarrhea at first. I was more tired, and all my many allergic reactions and food sensitivities were amplified. When we tested, fairly late in the porcess, I had become anemic and was low in several minerals and D3, despite intense supplementation. The chelators remove other things besides the toxins.

I feel less sick and tired after stopping the treatment, but I am still very ill. Started anti-viral Valtrex yesterday, and will start antibioticsi in 6 weeks.

Melissa

My husband had the typical 3 hours bag of IV cardiac chelation, which is mainly EDTA amd takes out all metals but its a very poor chelator of mercury. You need to supplement important minerals when doing the chelation and reintroduce those minerals and electrolytes which have been chelated out in the process. . But the IV always made him feel very well and full of energy for a few days.

He also takes several tablets of something called EDD - for a few days and immediately before chelation, dental work to remove mercury or an IV which challenges out the heavy metals to find their levels. Follow the directions on the bottle..this stuff, besides being a chelator, also protects your organs of elimination from the effects of heavy metals coming out.

He took what is called the "triple challenge" where they put an IV of three chelators into you, 20 minutes apart from one another...then, for the next 5 or 6 hours, you pee into a container and send the results to Doctor's Data lab to chart the metals which were challenged out. They send you a read out.

 His mercury was off the charts, but so were cadmium and lead. The cardioligst believed his mercury to be a contributor to his cardiolvascular disease, but cautioned that it isn't wise to try and chelate out mercury until you have all the mercury removed from your mouth. He has also noticed that it is much more often mercury fillings rather than fish in the diet that causes the heavy mercury toxicity in patients.

When IV EDTA chealtion became hard for us to find on Saturdays and very expensive, the doctor put him on Lipophos EDTA, which is phos. choline and EDTA. He believes it to be the best oral chelator there is and just as effective for heavy metals as the IV EDTA. It tasted like a creamy motor oil and he hated it, but he took it three times a week.

Once his fillings were out, he began a topical compounded glutathione and DMSO compound to chealte out mercury, every other day. To be applied to his arm at bedtime. This is what our cardioligist has found to be the most effective mercury chelator there is to date. Husband took this only for one month and had no unusual reactions to it. After a month, he stopped because his mercury tested WAY down in the low normal range and it was fairly expensive.

The cardiologist has studied all the types of chelators out there and hasn't found many that do much good as far as actually decreasing heavy metal loads. I took a homeopathic chelator for a couple of months back in 1994 and had constant headaches - awful ones - and had to use the bathroom several times a day. I felt like hell. Just bascially blah..and decided I couldn't spend the few waking hours I had sitting on the john with a blinding headache and so I stopped the stuff. But I was told I reacted like I should have and it was probably working. When I get my remaining mercury filling out, I may begin the compounded topical glutathione and DMSO cream.

I have not been tested for lead and cadmium but I suspect mine might also be high..although the doc says smoking can cause both to be high and I have never smoked. Remember...the metals come out in "layers". like peeling an onion...chelating pulls out the metals and you may test low, but then 6 months or a year later, you may find that more has risen out of its hiding places in tissues and organs and are where you can get to them with further chelation. So don't just test once and believe it's all out.

Taking the EDD - essential daily defense could really make a difference in any digestive symptoms you have with chelation.  this helped my husband a great deal and isn't a bad "mild" chealtor on its own, for people who are really sensitive or dealing with many issues at once and have to go easy.

 Astrodiana

 

Diana, Let me interject here and just say what a pleasure it is to have you return to posting here. Thanks for all your recent input.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Thak you MacKintosh...I will begin a blog soon, since I know that some of the stuff I write probably isn't cogent to the discussion of Cpni.

Astrodiana

Diana

I have to second MacK's statement, and add that there are so many unexpected things that are directly or indirectly linked to cpni, and you are one of the early ones to go through this, that your comments, relevant or not, are welcome.

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Thanks, Rica...but there are times that I digress terribly Embarassed  and I know it...sometimes when I start talking about anything that makes me passionate (like Cpni and how treating it can make a world of difference) my sons call it one of my "great digressions". So - at your suggestion, I think I will do a blog to stay on the right side of the powers that be.  I know it's good to keep comments as simple as possible for those of us with brain fog and those of us learning something new.

There is a LOT that's new here to learn about, such as the use of caffeine . And many other things (such as doxyi) which have become a staple that were not used at all in my protocol.  Funny, that doxie and minocin are the things that gave me the most unnerving symptoms when I began them last fall, yet 15 years ago a year on Minocin gave me no reactions.

Astrodiana

Thanks for posting on this topic. In June I took about a week of Interfase Plus (two caps a day). It completely hammered me with the release of toxic metals and organisms. I talked to my doctor at the end of June and told him I didn't think I needed my T3 meds anymore because I was sweating in the morning, heart racing, dropping weight like crazy.

He thinks because I cleaned out the biofilms the bacteria hiding there were no longer producing hydrogen sulfide which he says is a powerful hybernation signal to the liver. (which is responsible for the conversion of T4 to free T3. I am totally amazed as I have been taking T3 for the last four years. I really hadn't bought into the whole biofilm concept but now I am a stunned believer.

I have more work to do with getting rid of my body burden of toxins. I just finished a week of Interfase Plus. Didn't feel bad until the last day. My urine reeked of metals. I plan to wait a week and do about 5 days of OSR.

Thanks for the tip about EDD Diana.

Raven

 

Feeling 98% well-going for 100. Very low test for Cpni. CAPi since 8-05 for Cpn/Mycoplasma P.,Lyme, Bartonella, Mold exposure,NACi,BHRT, MethyB12 FIRi Sauna. 1-18-11 begin new treatment plan with naturopath

I am glad to see more people posting on chelation and biofilms. The biofilms and heavy metals are a large part of getting rid of toxic pathogens from the body.

The topic of InterfasePlus being a very strong biofilm buster is very real by the strong reactions from the users. I know from my experience, it also hammered me.

You can also use enzymes within the biofilm protocol along with apple cider vinegar. It has been a bit easier on my system before I embark on the Interfase once more.

 Iwould like to learn more about the chelator called, NDF. It was brought to my attention by a chelation specialist. Has anyone used it with good results?

 

started Wheldon capi 4/21/08 for Cpni, CMV, EBVi, CFSi. Cap hold 4/09vascultis. Restart 9/09 with Dr.Powell, restore gut, 4000 D3, supplementsi,  Pos. Bartonella and Babesia, Rifampin 600 mgs and Biaxon 1 gram. 

I would like to know what kind of material is the best for replacing silver amalgam fillings. I found out, that white fillings are made from glass-ionomer cement which contains fluor and aluminium. At least here in Europe. So, it is also harmful.

Stratton/Wheldon protocol 02/2006 - 10/11 for CFSi and many problems 30 years

Porcelain and nickel-free gold are good. If you have tiny amalgams, gold foil is a good replacement.

minocycline, azithromycine, metronidazolei 2007-2009, chelation for lead poisoning, muscle pain, insomnia, interstitial cystitisi (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (no longer hurt)

Hi Janice, thank you for your answer. Do you have gold foils in your teeth? I have mainly large and deep amalgam fillings, two of them are covered by porcelain, so I am not sure, if it is possible to have such gold fillings. I have never heard about them. Also when one have a porcelain crown, does it mean, that mercury does not any damage under the porcelain? Maybe it can poison bottom of the tooth..

Stratton/Wheldon protocol 02/2006 - 10/11 for CFSi and many problems 30 years

I only have two small amalgams.

Gold foils used to done more in the early 1900s in the USA. Some holistic dentists in my area have started doing them again, but for small pits only.

I hope any amalgams under porcelain are doing no harm. I don't know what you would replace them with, or how your dentist would get at them.

minocycline, azithromycine, metronidazolei 2007-2009, chelation for lead poisoning, muscle pain, insomnia, interstitial cystitisi (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (no longer hurt)

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