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Any Facebook members on here?Submitted by Andesine on Sun, 2008-04-20 05:06. There are a number of MSi groups on Facebook, I suspect there may be other groups for ME etc. As I find them I post info and send them here. If you have an account do a groups search and see what you can find.
___________________________________________________________ Berkshire, UK. Diagnosed RRMSii Feb 4th 2008. NACi 2400mg. All supps. Doxyii 200mg. Zithii 250mg. Metroii 400mg. »
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Yep I'm on Facebook. Never
Yep I'm on Facebook. Never really thought of it for that purpose, but it's a great idea.
CFSii and Prostatitis for 2 years.
Doxyi 200mg/day. Azith 250mg MWF. NACi 1200mg/day.
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CFSii and Prostatitis for 2 years.
Doxyi 200mg/day
Azith
I am on Face as well, I will
I am on Face as well, I will have a search for an ME/CFSi group.
CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8
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CFIDSi/ME 32 yrs, FMSi,
IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#13 1240 mg X 3 days 8-7-08Last night I went on Face &
Last night I went on Face & joined all the big ME/CFSi, FMSi, Lymes groups & posted a brief reference to our site & how it has been helping me. This should reach about 1500 people, if all the members read the wall. I will do it again in a few more weeks.
I actually posted one of my picss on Canada's Photo Contest sight & got 2 votes. I am really excited, lol... I didn't think I would get one vote!
CFIDSi/ME 25yrs, FMS, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8
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CFIDSi/ME 32 yrs, FMSi,
IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#13 1240 mg X 3 days 8-7-08Careful not to push it too
Careful not to push it too hard. Facebook are clamping down on what they consider spamming. Members can hit the report button and if the FB guys see several identical posts in a short space of time they will kill your account and delete all your posts and there's no arguing. Some friends got trashed for no real reason that I could see.
Berkshire, UK. Diagnosed MSi Feb 4th 2008.
NACi 600mg Feb 9th 2008. Increased to 2400mg Feb 19th plus all supplementsi.
No GP/Neuroi support. Self medicating with assistance from D W.
Started Doxyi 100mg 20th April 2008
___________________________________________________________
Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.
NACi 2400mg. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008. First pulse June 2008
Thanks Ande, So far, so
Thanks Ande,
So far, so good!
I didn't send the same thing to each, which in hindsight, was more work, but, was for the best!
CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8
___________________________________________________________
CFIDSi/ME 32 yrs, FMSi,
IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#13 1240 mg X 3 days 8-7-08Maybe we should have an
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Male 35 years (Hamburg-Germany),CFIDSi, IBSi, Enterovirus, Cpni for years positive,treated Enterovirus with Inf-y,Inf-a.,Riba. Started Wheldon Capi on 02/19/08, Currently NACi 2400, Doxyi 2x100, clarithromycin 2x500, metroi pulses, 12 g calcium pyruvat
I just put up a group on
I just put up a group on facebook . Just go to groups search for
CPN - Chlamydia pneumoniae
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Male 35 years (Hamburg-Germany),CFIDSi, IBSi, Enterovirus, Cpni for years positive,treated Enterovirus with Inf-y,Inf-a.,Riba. Started Wheldon Capi on 02/19/08, Currently NACi 2400, Doxyi 2x100, clarithromycin 2x500, metroi pulses, 12 g calcium pyruvat
Ummmm need to think about
___________________________________________________________
Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.
NACi 2400mg. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008. First pulse June 2008