Anti-biotics not working/kidney liver probs?

Just back from visits with MD and naturopath. It seems that my creatinine is continually low and I am having trouble processing uric acid. Knees are swollen/painful to 3X the size since December with no relief.

Plus, it seems alot more bacteria/parasites etc. in my blood as per live blood cell test today/ recurring UTIi/Ear infectionsi/

The opinion seems to be that the abxi are not working well/if at all for me anymore and are perhaps not doing my liver/kidneys any good.

Anyone having this problem? Of course, I am terrified to get off abxi......as it has been a lifesaver. But perhaps a break is needed?

Any advice/experience so very welcome. Perhaps go on the intermittent and see along with naturopathic help?

Thx, Linda

Comments

Ditto here - swollen legs/knees/feet

I also have swelling of legs, knees, and feet that is not goat or arthritis. The swelling used to go away over night but not any more it is there all the time and gets worse as the day progresses. Do you take Hydrocortisone Acetate? in additions to abxi? I do 30mg/day. I am going for blood work middle of next  month. I sent you a PM so that we can chat more if you wish. M

Sounds super - apparently my

Sounds super - apparently my problem is that I have the lyme and co-infectionsi ans althought the CPNi treatment has been killing things thank God...I am struggling with liver producing enough creatine and not processing uric acid well + although I am supplementing heavily with B-12 it is disappearing and so points to the lyme/co-infections/immunei system a li'l down form abs........I have this same swelling that used to go away and now does not - as you do. XO

The intermittent protocol is

The intermittent protocol is for when you're basically done (feeling fine).  You might have some other problem which the antibioticsi aren't addressing, but you're certainly not feeling fine.

As for the high uric acid levels, have they used the word "gout"?  That might explain the damaged knees.  There are medications for gout, as well as dietary recommendations; see Wikipedia's article on the subject:

https://en.wikipedia.org/wiki/Gout<

Thank you Norman, I have been

Thank you Norman, I have been on CAPi almost 2 years - no more brain fog/not tired/no pain - feeling fine until the knees that is...yes, something here that the abxi are not addressing - think parasites - at least that seems to be the professional opinion. I checked gout and it seems not. So I will keep on trying to figure this one out. In the meantime perhaps the Intermittent to relieve my liver/kidneys. I just have to find out what that protocol is exactly as I seem to have 2 versions of it. I will ask on here. Linda

Linda, you are a teacher and

Linda, you are a teacher and so on your feet a lot: if you are sure you don't have gout, might the knee problem be osteo arthritis?  Not everything has an infective cause: I have seen my friend's knees!.....................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hi Sarah and thanks for

Hi Sarah and thanks for answering. Yes I do have osteoarthritis as well Frown but this is presenting differently and with results of live blood cell points to bacteria/lyme. It could be that there is a bacterial/parasite component to your friends' knees. Hope not!

I continue to take my osteo meds, but looking to go on intermittent capi as per regular lab test results. I have posted for help with this. I see that you were on that for 3 years - how did you proceed?  Linda

No Linda, my friend does have

No Linda, my friend does have osteo-arthritis: both her knees have been scanned and she already has had a hip replacement.

You talk about your expert's opinion, but expert in what?  Has your live blood cell test seen spirochaetes: if they are there they should be visible unlike cpni which is far too small.  Then you also have trouble processing uric acid, so are you sure that it isn't gout?  It isn't something that only affects elderly port drinkers.

If your doctor is primarily a naturopath, of course he won't be a friend of long term antibioticsi, yet they saved my life and that of before mentioned friend's daughter, but with taking a few probiotics at the right time we are neither of us inflicted with kidney or liver problems...........................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hey Sarah, Just saying that

Hey Sarah,

Just saying that what they call osteo-arthritis - I think? has a bacterial/parasitical component - I had a hip resurfacing at the age of fifty and tons of pain many years before that. Yes, my live blood cell has seen spirochetes and I can send pics if you would like to look - quite ugly - aaarrrghh. The abxi has saved my life. This is info from my MD and also naturopath who both agree that your protocol has been life saving. But now, my liver is not prodicing enough creatine and kidneys struggle to process the uric acid. I am so glad that you two have not been afflicted with kidney/liver problems - you are made of strong stuff for sure. I will try to keep finding my way. I do not want to off the CAPi and neither does the naturo want that ,but perhaps a reduced schedule and help from herbals. Hope this all makes sense - just trying to get my head around new things is all and thank you, Linda

Linda, certainly there is a

Linda, certainly there is a bacterial component in that it can be set off in some people by an infection, but once the damage is there, it isn't going to be miraculously cured by taking the right antibioticsi.  The worn away joint will need ither resurfacing or replacing, but treatment can stop it getting worse or stop it moving somewhere else.

As to whether I am made of strong stuff or not, arthritis does not run in my mother's family or my father's as far as I know.  Both sides of the family with one or two exceptions, have reached a great age.  My friend's family is unfortunately totally different.......................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Aw, sorry then for your

Aw, sorry then for your friend's family! I do everything I can to protect the working joints I have left lol. I had a resurfacing - hip at age 50 and had waited far too long. Sure it was/is bacterial after having been on this site and many others. I remain grateful for any help. I am now going to start intermittent treatment along with some homeopathic/herbal /supplement help from my naturopath.

Thanks Jesper and Homina,I

Thanks Jesper and Homina,

I also have Lyme. I do have a sauna and need to get in there more often. I will ask about the charcoal and the coffee. Doc is suggesting I go on the Intermittent protocol for awhile with help from homeopathic meds for bacteria/parasites......Alll so very confusing and I don't quite understand the ntermittent protocol either - I read to do abxi 2 weeks a month and then something about every 3-4 months....

It does seem as if the abxi are no longer killing the bacteria...

Thanks so much for your help - feeling lost a bit here. Linda

I sauna 3 times per week, and

I sauna 3 times per week, and never have kidney, liver problems although I take lots of abxi. I think it helps the body out. Having an infrared sauna might be good too. Dont forget to take charcoal/moppers regularly. 

Treating PPMSi with Azithromycin 250 mg every other day, Doxyi 100 mg BiDi, Coconut oil 4 times daily,  five flagyli pulses. Been sick since June 2009. Having good success and very few symptoms.

This may help

When I pulse or use anything that kills stuff off I get kidney discomfort which is the dieoff being filtered out by the kidneys and it overloads the them (I think)

Doing coffee retension enemas helps take the load off the kidneys. I have more than 50% less kidney pain when I do this

I don't know if this is helpful or applies to you.

DAILY:  NACi 2400MG , DHEAi sublingual , vit D3 , multi vits,./ Three times  a week: B12 injections (Hydroxycobalamin). Deer antler./  Once every few months methyl B12 Methyl injections