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SPMS< Supplementsii & NACi, Doxyi 200 mg, Azith 250 mg 3X/wk, starting flagylii slowly
Another step for Todybear
Submitted by Todybear on Mon, 2008-05-12 10:45. Today is another big day. I will start Azith today. I haven't had too much trouble with the Doxyi, some burning stomach and moments of real weakness but primarily emotional upsets. I had a really rough mother's day yesterday. Spend a lot of time feeling sorry for myself in tears and know that I felt unusual inside. I find some improvement in my feet, much less pain and swelling at this point. I have been on the suppliments for six weeks and the Doxy for 12 days. So today I will add the Azith. I hope to be able to keep my act together as it is time to work in my greenhouse more, I have 100's of seedlings that need their mommy.
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Hope it all goes well.
Hope it all goes well. Feeling needed is great is takes you out of yourself... Sorry to hear that you felt so long on mother's day. Hopefully next mother's day will be a different story.
Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMS, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006
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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMS, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006
Tody - Sorry to hear you had
Tody - Sorry to hear you had a rough Mother's day. I bet your whole family would say that you are an amazing mother!
Glad you have improvement in your feet and are ready to add the azithromycin. It's a good step in the right direction. Be prepared though - if your emotions continue to be weepy - you may already have some porphyriai creeping up. Hang in there though and double dig yourself deep into the trench because you have a long way to go but you are ON YOUR WAY !
By the way - I too am a gardner and have a greenhouse. I have seeded about a hundred moonflowers and finally have shoots up this week. Love love love to see moonflowers on a summers eve. To be that beautiful and fragrant for just one night - gives me chills !
Daisy - Husband on CAPi 5/07. Roxyi, Diflucan round three 4-4, Rifampin, Bactrim DS, Mepron 4-6,
Prednisone,Novantrone, Doxyi, Azithromycin, Flagyli, Minoi___________________________________________________________
Daisy - Husband on CAPi 5/07. Roxithromycin, Rifampin, Bactrim DS, Tindamax 6-23, Tetracycline 7-3,
azithromycin, doxyi, minocycline, diflucan, mepron, prednisoneTody, I agree with Daisy
Tody, I agree with Daisy there - the porphyriai does creep up on you somewhat. About 3 weeks after Paula was on the full dose of Roxyi, her moods rapidly went downhill and I was on the receiving end of it a lot of the time. Activated Charcoal is a MUST - even this early on in the protocol.
Mark
UK Carer of bedridden Severe ME/CFS Feb06. CPNi dx. Apr07. Samento 15 drops per day July07. 2400mg NAC 200mg Doxyi Jan08. 300mg Roxy Apr08.
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UK Carer of bedridden Severe ME/CFS Feb06. CPNi dx. Apr07. Samento 15 drops per day July07. 2400mg NAC 200mg Doxyi Jan08. 300mg Roxyi Apr08.
Todybear, The gloom you
[Doxyi,
Azith, Biaxin and Flagyli] for rrms since October '05. Added Amoxicillini 1gm twice daily and LDNi 4.5mg qhs October '07; Added Inositol[1gm] and Calcium Pyruvate[4-6gm] daily February '08, EDSSi was 6.5,___________________________________________________________
Began Wheldon Protocol for rrms October '05. Currently OFF all abxi since June 26, '08 due to severe porphyriai. Added LDN 4.5mg qhs October '07. All supplementsi.
I love to grow things, my
I love to grow things, my mom told me that I was born with my fingers in the dirt. It's a very cold spring here in Manitoba, Canada, so everything is late. It's still freezing here at night so my family has to carry in flats and flats of seedlings to the house each night and back out each morning as the greenhouse is not heated. Hopefully we will see some really summer temperatures soon.
I have studied up on prophyria and hope to do what I can to prevent it or at least keep it managable. Got any secrets on how to do that? Nice to talk to a fellow grower.
SPMS< Supplementsi & NACi, Doxyi 100 mg, Azith 250 mg 3X/wk
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SPMS< Supplementsi & NACi, Doxyi 200 mg, Azith 250 mg 3X/wk, starting flagyli slowly
KK2 I will try to keep the
KK2 I will try to keep the emotional thing in perspective. You must know how hard it is at times if you have dealt with it personally. It's hard enough to deal with the illness with faculties intact, but subtract rational thoughts and replace it with the Kleenex box, it's not a pretty picture. At the end of the day, there's a new one on the horizon. I guess it's just one day at a time. Bless you for your support.
SPS< Supplementsi & NACi, Doxyi 100 mg, Azith 250 mg 3X/wk
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SPMS< Supplementsi & NACi, Doxyi 200 mg, Azith 250 mg 3X/wk, starting flagyli slowly