I thought I would post something about where things are at the moment. I began taking INHi over two weeks ago. I haven't noticed anything dramatic but there are differences, though subtle. I don't know if it's my imagination or a genuine difference, but things are a little different. I stress a little. It might just be that I want things to be different so much that I'm making in different in my head.
In any case, I go on. I also started something else new just this week. Saturday, I cracked open my first shipment of Calcium Pyruvate and began to prime myself before taking my second dose of Rifampin each day which is also when I take INH for a given day. I decided to take it this morning as well, 45 minutes before I took the days first dose of Rifampin, which is also when I take my first dose of Azithromycin (MWF) and my daily dose of Doxycycline (200mg). I did notice that I felt a bit more "normal" when I began walking later in the morning, which may just be the additional energy from the Pyruvate and probably is.
Anyway, just thought I would put something down so that I have it in print to remember down the road.
all my best
John
RRMSi/EDSSi was 4.5, was 4.???, now 5 on Wheldon Protocol (nac, doxycycline, azithromycin, metronidazolei) since 04/12/2006. Added Rifampin 2x150mg/daily on 08/19/2007. Added INH 300mg/daily on 03/17/2008.
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all my best
John
RRMSi/EDSSi was 4.5, 5, now 6 on Wheldon Protocol (naci, doxycycline, azithromycin, metronidazolei) since 04/12/2006. Added Rifampin 2x150mg/daily 08/19/2007. Added INHi 300mg/daily 03/17/2008 stopped 05/08
John, I have had similar
On Wheldon regime [Doxyi, Azith, and Flagyli] for rrmsi since October '05. Added Amoxicillini 1gm twice daily and LDNi 4.5mg qhs October '07; EDSSi was 6.5, now 5.5. United States.
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Began Wheldon Protocol for rrmsi October '05. Currently OFF all abxi since June 26, '08 due to severe porphyriai. Added LDN 4.5mg qhs October '07. All supplementsi.
I take 3 gms a day but don't
I take 3 gms a day but don't have MS. I had a noticable increase in energy in the beginning. It went down & I increased my dose & then it got a little better.
In 2 weeks I will be back home & contending with the temperature difference. I will increase it at that time to help the transition.
Though, I might be killing more critters! That is good too.
CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8
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CFIDSi/ME 32 yrs, FMSi,
IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#13 1240 mg X 3 days 8-7-08Ruth, as well as the
Ruth, as well as the Pyruvate, do you take D-ribose and/or glucose for your energy. Or is the Pyruvate instead of these?
Mark
UK Carer of bedridden Severe ME/CFS Feb06. CPNi dx. Apr07. Samento 15 drops per day July07. 2400mg NAC 200mg Doxyi Jan 08.
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UK Carer of bedridden Severe ME/CFS Feb06. CPNi dx. Apr07. Samento 15 drops per day July07. 2400mg NAC 200mg Doxyi Jan08. 300mg Roxyi Apr08.
Mark
Mark
I'm not Ruth but I take Ribose. I started it about 2 months ago or so and haven't noticed any energy boost from it whatsoever. However, the Pyruvate does help.
all my best
John
RRMSi/EDSSi was 4.5, was 4.???, now 5 on Wheldon Protocol (naci, doxycycline, azithromycin, metronidazolei) since 04/12/2006. Added Rifampin 2x150mg/daily on 08/19/2007. Added INHi 300mg/daily on 03/17/2008.
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all my best
John
RRMSi/EDSSi was 4.5, 5, now 6 on Wheldon Protocol (naci, doxycycline, azithromycin, metronidazolei) since 04/12/2006. Added Rifampin 2x150mg/daily 08/19/2007.
Added INHi 300mg/daily 03/17/2008stopped 05/08I've never taken D-Ribose,
I've never taken D-Ribose, but the Pyruvate is certainly effective for me. Glucose never did much for me but it helps Ella with the pain she gets in her arm. My choice would be pyruvate, especially as Paula is sensitive to glucose.
Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006
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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006
Michelle You touch on
Michelle
You touch on something that had crossed my mind to bring up, so I'll use this opportunity to do so. My understanding is D-Ribose/Ribose is for energy production; however, the lingering question is whether it might provide some assistance with porphyriai as glucose does. For that matter, whether Pyruvate might also help. Both are involved in supplementing the process leading to ATP, so I wonder if they might be alternative therapies to deal with Porphyrins.
Just one of those questions this lay person wonders...
all my best
John
RRMSi/EDSSi was 4.5, was 4.???, now 5 on Wheldon Protocol (naci, doxycycline, azithromycin, metronidazolei) since 04/12/2006. Added Rifampin 2x150mg/daily on 08/19/2007. Added INHi 300mg/daily on 03/17/2008.
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all my best
John
RRMSi/EDSSi was 4.5, 5, now 6 on Wheldon Protocol (naci, doxycycline, azithromycin, metronidazolei) since 04/12/2006. Added Rifampin 2x150mg/daily 08/19/2007.
Added INHi 300mg/daily 03/17/2008stopped 05/08Good question John - anyone
Good question John - anyone know?
Mark
UK Carer of bedridden Severe ME/CFS Feb06. CPNi dx. Apr07. Samento 15 drops per day July07. 2400mg NAC 200mg Doxyi Jan 08.
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UK Carer of bedridden Severe ME/CFS Feb06. CPNi dx. Apr07. Samento 15 drops per day July07. 2400mg NAC 200mg Doxyi Jan08. 300mg Roxyi Apr08.