An overactive bladder

What's that? I don't believe in something with no cause. And overactive bladder has no cause. But I think there must be some bacteria and bladder is lucky to be able to get rid of bacteria  in natural path. So the more often and the more urgent urination is the more bacteria are there and the bladder wants to get rid of it the soonest so a few meters are sometimes too far. 

Maybe 5 years ago I went to the spa and as I was afraid of disaster I drank very little while traveling. The next morning at the standard test they found plenty of bacteria in my urine. I was ordered to drink much water to splash it out. And in 3 days my urine was clear with no bacteria but there was usual urgency. While I didn't drink there were no urgency and bacteria stayed in my bladder. After coming home from the spa the first way was to my GP and asked for the test of urine. Surprisingly it was again clear.

Now I got angry with my "overactive bladder" and decided to defeat it. So I am going to order cranberry in the mixture with D-Mannose and I hope it will be better. I don't know why I haven't ordered it sooner.

What I have noticed after increasing abxi or during and after pulses it gets always worse. As if abxi help to kick bacteria out of the bladder. And the urgency also gets worse. I hate it so much. I stay at home only because of this problem If it weren't for this problem I would go for a walk or to the supermarket or wherever.

5 days ago I started to take roxi in one dose. There where much reactions (in my head, legs, difficulty with breathing) in the first days but now I think I am better. As if my legs felt stronger, I can stand up fast and usually without support of my hands (my hands are only in alert if something...), I can do usual work with almost no effort and I can even do more work. These days and the next month we are having stressful work in my family -reconstruction of a flat. Everybody works hard to arrange something and I do either. Arranging things on phone and there is nobody to help me at home so I have to manage everything by myself and I really do. Sometimes there is more mess in my flat but I don't care about it I say to myself I will do it tomorrow and I really do it with no effort. Only my bladder makes angry me. When I move, walk, bend, lift something there is always terrible urgency. So when I go past toilet I always enter it, bu often nothing. So I go out and after 1-2 steps there is again terrible urgency that sometimes way back is too long Yell. When it stops? I hope cranberry will help.

Comments

Rica, it isn't ok with you,

Rica, it isn't ok with you, it's perfect! You really don't need to get your feet behind your neck unless you want to be an attraction in a circusLaughingSmile. I don't think you want. You do so many things and live the life full of lots of activities that you can be happy. And I am happy with you.

MSi for more than 30 years, WP since July 08, break Jan 09-March 09. NACi 2x600mg, Doxyi 2x100mg, Roxi 2x150mg, Entizol in pulzes, LDNi, supplementsi 

Our computer has had a

Our computer has had a broken capicitor for several days, and is now fixed.  But I'm not - can't get my feet behind my neck.  Must be too many years of fading to disability and MAYBE too much permanent damage - or just plain too many years.  However...ther are about a thousand things I CAN do that I never thought I would again.  It's ok.

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.

good article..nice work! :)

good article..nice work! :)

Thanks David. I haven't read

Thanks David. I haven't read about this work though if I were interested in it I would find it for sure. But I wasn't interested in IC as I thought it couldn't be my problem. But when my MSi started to improve I realized other problems which were there but I didn't care about them because then they seemed to be minor. But I somehow thought that IC and arthrititis which bother me now most were also the problem of cpni. I always say that MS is a very likeable diagnose for docs as there is MS they don't need to bother to examine other problems - very probable answer is it is MS. 

Thanks once more for the link. Now I am sure the only thing I can do is to continue in the treatment and try to follow the "official recommended"treatment which doesn't treat the cause but should help to manage difficulties until they are cured. And also my own experience what helps me and what worsens the thing.

MSi for more than 30 years, WP since July 08, break Jan 09-March 09. NACi 2x600mg, Doxyi 2x100mg, Roxi 2x150mg, Entizol in pulzes, LDNi, supplementsi 

same problem...they

same problem...they diagnosed me with a neurogenic bladder? something to do with nerve damage i suppose...vesicare (prescription) help's a lil- bit...

I'm sure you know about this

I'm sure you know about this interesting work:

http://www.ic-network.com/newsroom/vanderbilt060601.html 

D W - [Myalgia and hypertension">i (typically 155/95.) Began (2003) taking doxycycline and macrolide and later adding metronidazolei. No medication now. Morning BP typically 110/75]

Thank you thank you for that

Thank you thank you for that link!  :)  Very helpful--I always said that it was bacteria.  

I had not seen that study--suffered for about four years with IC.

Started the antibiotic therapy--symptoms improved 80% or so.  Due to porphyriai torture  I stopped antibioticsi and started the  Terry Wahls diet. As long as I keep my sulfur food quantities high  I am OK. However, I am not healed and that is my goal.

So, will likely revisit antibiotics in the near future now that I think my body is detoxing more efficiently.

I can't say enough about the diet--I have my life back after so many years of suffering.

It is a trick to keep up the high volume of vegetables--but the most difficult day on the diet is still better than the best day prior to it.  Pretty miraculous.

Once  I catch up again on my life I hope to be able to quantify the building blocks--in food-- that create NACi in our bodies. I have spent a great deal of time trying to track it down but actual numbers are elusive.

Likely will be writing some serious food chemistry geeks. :)  We love our geeks. 

Thanks again David.

Katherine 

 

 

 

 

 

Yes, Sarah, this exercise is

Yes, Sarah, this exercise is that really nobody can see you are doing it. You do it while sitting and watching TV or anytime you are sitting and you remember to do it and nobody notices it. Give my regards to your mother.

MSi for more than 30 years, WP since July 08, break Jan 09-March 09. NACi 2x600mg, Doxyi 2x100mg, Roxi 2x150mg, Entizol in pulzes, LDNi, supplementsi 

Evita, my mother does some

Evita, my mother does some simple exercises as well and she must admit that they help, plus nobody can see her doing them.  I hope you don’t think I was being a know-it-all, but it just occurred to me that it might help.

I also think that if Rica manages to sit with her feet behind her neck she should post a photo.   However, to my mind those sorts of yoga movements can be dangerous.  I used to be able to walk on my knees in a lotus position.  My yoga tutor used me as a demonstration,  but really, what is the point?............................Sarah

A  Journey through Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Sarah I am afraid you are

Sarah I am afraid you are again right. I have just remembered I did a simple exercise for lower abdominal muscles. This has been the problem with me for many years so I always tried many things to help. And this exercise always helped. I did it yesterday evening and today urgency is better. I have to do it regularly. It doesn't make stronger sphincter muscles directly but it helps somehow.  But I think this exercise also little employ sphincter muscles. Also probably I have some lesions in my spinal cord because after a visit to chiropractor my legs were more numb sometimes though it always improved after a few days. Also my urgency improved.

Roxi in one dose is perfect for me now. In the afternoons I am starting to look forward to the evening dose and after taking it I feel immediate a little improvement.

Rica, also your theory whenever an area is being attacked, the symptoms get worse seems to be the truth. Or I am also speculating if that can't be toxins from the killed cpni and the bladder wants to get rid of them the soonest.

Rica if you put your feet behind your neck, please send a photo of it. But please don't hurt yourself. For me it was always problem to hold my foot with a hand and then to lift my leg with hand. Even when I was a student.

Katherine thanks for link. When I read the symptoms of interstitial cystitisi I would say I have it definitely. But I have never believed in the diseasesi with no cause. I have also read the recommendation for good and bad food. I can say that I usually eat according to the recommendation. What I found a difference and a big difference is beef. I can't eat it at all. After eating it for sure the next day there is the worst disaster as could be. And they recommend it as the soothing food. I also don't like coffee, black tea and green tea are forbidden. The coffee is the most powerful natural antioxidant">i, also the black tea and green tea clears our body. So maybe these effects are the cause that they worsen the overactive bladder. But they worsen it only for a while till they go out and then it's ok. So I don't want to stop to drink these beverages. I think If someone doesn't drink green tea he harms himself because more toxins stay in body and in a few years the problem may get worse. What I try to stop is drinking carbonated water though I drink just light carbonated water but I don't think it can make any difference. And that discomfort may be candida. Today I started to feel much discomfort so I took anticandida things I have from my gyn and it's ok now. No more discomfort. 

 

MSi for more than 30 years, WP since July 08, break Jan 09-March 09. NACi 2x600mg, Doxyi 2x100mg, Roxi 2x150mg, Entizol in pulzes, LDNi, supplementsi 

Evita--have you ruled out

Evita--have you ruled out interstitial cystitisi

 http://www.ic-network.com/

 Like bladder  torture.   If it is the cranberry juice will be a nightmare.   Too much acid.

This is a good website and if it is IC you likely can put it in remission with diet.

 Baking soda (aluminium free) and water through out the day can head off a flare.  Grapefruit seed extract--very effective together.  It can take a few days. 

There is a list of foods--best and worst--and also the top five list is good.

 Katherine 

 

 

@Rica,OK old Lady! Put your

@Rica,

OK old Lady! Put your feet behind your neck! 

PPMSi-misdiagnosed 2001-diagnosed 2006. Probably caught cpni in birth canal but it didn't pass BBBi until my 40s. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAPi 3/2/07 Stopped 12/12; resumed 12/13

What Sarah says seems to be

What Sarah says seems to be true with many of us.  And, too, whenever an area is being attacked, the symptoms get worse.  That has certainly been a pattern for me.  Often, there is a period of improvement of a symptom for a time, followed by another attack on the area.  This has been repeated over and over for years, with a rising level of improvement overall.

And the spinal lesions - for years before I was diagnosed, - and it was forever worsening - I could bend my head down, my body would go numb, and I would begin to crumple.  By lifting my head, I would prevent that.  Richard said "Don't do that!".  Apparently I had a growing lesion that has now vanished, because I don't get numb any more.  He also told me not to dislocate my hip, which I used to do for fun.  Haven't done it for years.  He hasn't told me not to put my feet behind my neck.  Wonder if I still can?

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.

Evita, I’m glad that you

Evita, I’m glad that you are getting on well with roxithromycin, but with regards to your overactive bladder, part of the reason might simply be that the sphincter muscles are too weak, if you have lesions in your spinal cord this is very likely: not irreparable but it will take longer.  It took me about five years, I think.................. Sarah

A  Journey through Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.