Adding mg

Hi!

This is Gisel.la from Barcelona (and probably a few bacterias/viruses which join me today...) 

I just started the treatment last 1st of June, I got the antibioticsi sended from India, so I hope they are right.

The first 4 days I started with Doxycycline 100mg (and all the supplementsi from the polypharmacy mentioned in Dr. Wheldon's protocol). Last Monday I added the Azithromycin 250mg three times a week. 

I must say I have an MSi with brain lesions but a few recovered symptoms, so I asume I am still in a really initial stage. 

The effects of the Doxycycline were a bit strange. A 'worm' moving inside my right eye and my left elbow. Precisely places were I previously had problems. 

Adding the Azithromycin made me more tired than normal and the foggy brain feeling got intensified. I guess it is all part of it. 

Though, my next question would be, when would it be a reasonable moment to:

- Add 100mg of Doxycycline more per day? the protocol mentions 200mg per day at some point, right?

- Add 250mg of Azithromycin per day instead of 3 times a week?

- Add 600mg more of NACi< per day? the protocol mentions to take 1.200mg per day (if I am not wrong). 

Just starting and plannifying for in case my foggy head gets unable to think by itself. 

Really, really, really appreciated. :)

Gisel.la 

Hi Gisel.la,   a  quick answer due to my sick PC! You can take the extra doxyi whenever you feel up to it: I took it from the start but no need to take more. No need to take more than 250mg of azthromycin morre than three times a week either: it won''t make you better any quicker. You could take roxithromycin every day though because it is much kinder: I always took it.. Add the extra NACi whenever you feel  up to it.

New computer has just arrived so must now set it up!...............Sarah 

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hi Barcelona!

I am glad to read that the medicines seem to be working on parts of your body. Glad too, that you are not suffering too much ill effects either.

The full dosage of NACi that you need to be aiming for is 2400 mg per day.

The full dosage of doxycycline that you will need to be on as soon as tolerable is 200 mg per day.

In the early days, soon after I started this protocol, I was talking 300 mg of roxithromycin. About 18 months later, I switched to 250 mg of azithromycin three times a week. I later changed back to roxithromycin and have since changed back again to azithromycin. To be honest, I haven't noticed any difference. Whatever is cheapest for you to get will probably be good.

I know that when you come to pulse with nitroimidazoles, metronidazolei is vastly cheaper in Spain and can just be bought over the counter. I have taken lots of tinidazole but have only ever once taken metronidazole. To be honest, the metronidazole seemed more effective but was much cheaper. The biggest drawback is that it is three times a day unlike tinidazole, which is only twice a day.

Good luck!

G.

“Don't believe everything you read on the internet.”

―    Abraham Lincoln<

XXX :)

Good luck with the new computer Sarah! :)

Supaguy! 

I got confused! ;) 

I am still not in to the Metronidazolei/Tinidazole... got a few too many pills to count! O.o

Thanks for the info.

The objective is:

Doxyi: 200mg a day.

Azithro: 250mg (3 times a week) - I'll try the Roxyi when I finish these ones. 

NACi: 2.400mg day. 

And after 3 months... I'll write back to know what to do with the Metro... OMG! I hope I get a pharmaceutical certificate after all these research! ;)

Once again. Many, many thanks! :)

G. 

Hi again Barcelona!

Yes, you quite rightly aren't yet taking either of those pulse medicines - metronidazolei or tinidazole. You won't even need to think about those for at least a couple of months after you have been talking the full dose of bacteriostatic antibioticsi - doxycycline + azithromycin or roxithromycin.

As I say, you are doing just fine. Very good luck to you on this road to wellness.

G.

“Don't believe everything you read on the internet.”

―    Abraham Lincoln<

Thanks a lot Supaguy! :) 

I just hope to prevent the self-prison... I really cannot visualize myself not being able to control my body... I'll keep you posted in the next MRI (1-8-2017), after 2 months of Protocol. 

In the last one I had 6 new lessions and 4 were active...

No new lessions would just make it right to me. :)

Hi Gisel·la, I had my first MRI after about six months of treatment.  I was horrified at what had been going on inside my brain, but reassured that by then that no lesion was active.   I guess the activity stoppped nearly as soon as I started treatment.  I was rather worried whilst waiting for the scan, not knowing what would be found, because the number of lesions I had seemed to my mind, to far outweigh my MSi symptoms, but obviously my lack of ability to do certain things was caused by more than just one lesion.  As the radiographer pointed out various things, I was reassured, especially since a few lesions were diminishing in size and some of the newer ones had vanished.........................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Thanks a lot Sarah! :)

My first MRI (August 2016) had 4 lesions and 1 in the spinal cord. I am not really sure if they were active or not, actually, I have troubles understanding why a lesion can exist without symptoms.

When I asked the neurologist, he explained that it was as to see the point of an iceberg. I should understand it as 'something' is going on 'somewhere'. 

The last MRI (April 2017) showed 6 new lesions which 3 active.

I started the COPAXONE treatment in January 2017, so at the second MRI, I already had taken 3-4 boxes of it (I must say it is a painful injection which lasts as an egg under your skin for over a month... at one point, I was all 'bumpy'). 

The neurologist told me we could not be conclusive with the treatment unless 1 year would have passed by. Though, I had to sign a consent before to start the treatment, as 'I was responsible for it', and he pointed several times I would have to take the treatment they would decide (which made me feel a bit as a testing covaya, full of responsibility and out of choosing options). They work by teams, so from 3 different visits, I got 3 different neurologists. I guess they would love to come out with a revolutionary scientific paper which gives sense to their time. By now you must realise I built no trust on them. (Maybe one day I'll have to swallow my words, but this is how I feel today).

They explained me that I was on Copaxone as my intention was to get pregnant at some point, otherways, they would give me some kind of Interferon. 

Then I decide to ask for all the results and research it by myself, as, anyway, I was the responsible of what could happen to me. My family are extremely healthy as much as I (I have lots of blood analyses. I use to call it a preventic hypochondriac syndrom ;) ). Though, I had strange episodes during my life of 'strange' disfunctions: a neumonia which did not healed with the treatment, but recovered by itself (at the age of 8); a hand paresthesia when I was older, that Drs. concluded as a possible carpal tunnel misfunction; a piiiiiiiiip in my ear for 2-3 months (this was by far the worst. I though I was getting crazy under that noise), which ended after a treatment I cannot remember; and this last one, the lost of vision in one eye, which concluded as MS, after a Summer full of tests. 

The Neurologists tested for Measles and Chicken Pox. I am not really sure why, they never even told me, that I would be tested from those, as they never asked me for any medical history to rely on. 

Anyway, at the point of studying to get into a Zovirax treatment on my own (crazy as it may sound), I found Dr. Wheldon protocol. With all the research I would ever ask for, all the references, and openly available. Suddenly everything made sense, at least to me. 

I had troubles believing my immunei system would attack my myelini. My myelin? Why? Is my immune system hungry? If my immune system is there, attacking, it has to have a reason. They know how to do their work. Nature does. 

And here I am, with the Protocol started and expecting, impatienly and curious, my next MRI. 

And incredibly as it may sound, I am not worried, but fascinated and grateful, mostly grateful. 

G.

You know Gisel·la, when I saw my first scans, there were so many lesions that I thought that most can't be active, or couldn't ever have been, but they were there, so they must have been active at some time and probably quite recently, when I first started going off mentally!

I have heard of other people's experiences with copaxone, which sees to me a singularly useless drug, the only advantage being if you want to become pregnant while having MSi, but after running away from my first neurologist's diagnosis when I was about 25, I managed without any treatment until I became SPMSi, about twenty years later.  I think the MS must have started much earlier than 25 though, with all sorts of little things happening before I was even ten, getting better and then forgotten about.

When I got my real diagnosis,  someone from David's lab told me that he had spent several days working in his office, researching everything that can now be seen on his website, marking down all the references.  Finally, he came home one evening with a packet of doxycycline and that is how it all began!.....................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Sarah... 

Time brings everything on its place. This is what my mother use to say. And I hope one day your story will get the place that it deserves... brave as it is, and not just the story, but the aim to spread it for other's health no matter the critics nor opinions. 

Losing the head... I know about it. I wonder what is part of me and what is part of the disease. It is difficult to trace a line on that... 

I'll keep you posted on the next results. :)

G. 

Morning guys!

The 1st of August I got the routinary check up. Though, no MRI was made but an OCT (Optical coherence tomography) in which I had the chance to get an amazingly friendly young optician which showed and explained the results with an amazing patience. :) 

In a contradictory way, it seems I learned to embrace this disease. It gets me fascinated, and as little much I understand, as much more I want to learn. 

The results, by the way, seemed to be positive. I did not lose any Micro of macula, so nothing to worry about.

In September I start with the Flagyli, and it seems that next February I'll get the MRI, after 6-7 months of Protocol. Noone knows how curious I am. 

Flagyl pulses... should I take it in any special matter? (not mixed with the Doxyi, or... with the Calcium... or... I have absolutely NO clue! ;)  Any advise?)

Lots of love, I'll keep informing.

Gisel.la

You can take the flagyli with the doxycycline.  

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Hi!

Just to be clear to everyone that may be new.


The bacteriostatic drugs like doxycycline, roxithromycin are taken continuously throughout this treatment. There is no stopping. Azithromycin is taken 3 times a week throughout this protocol; there is no stopping. Those taking rifampacin, this is continuous; there is no stopping. The only drugs that you stop and start in pulses are either of the nitromizadoles: tinidazole or metronidazolei.


I hope that clarifies any confusion.


G.

“Don't believe everything you read on the internet.”

―    Abraham Lincoln<

Good afternoon Gisel·la.

  Here is one good reason to consider taking tinidazole in place of metronidazolei:  some people have no trouble in taking all the antibioticsi at the same time but others do.  When I changed metro for tini, I started the day with taking a double dose of both doxycycline and roxithromycin, then mid-afternoon took the first tinidazole, then the second just before dinner at about eight in the evening, so less of the day was taken up with pills and capsules!  

  Calcium should always be taken at least two hours apart from doxycycline as it can affect the absorption of that antibiotic.  Remember that activated charcoal must also be taken well apart from both supplementsi and antibiotics, because it will just flush them all out.  Chlorella doesn't have this effect, I'm glad to say.................Sarah
Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

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