A Young Woman Comes Back to Life: Zdenicka's Story

Zdenicka, as you will see, is a spirited, passionate and stubborn young woman. Her story is very heartening to read, and she holds nothing back in speaking of the trials of dealing with standardized medical treatment with a non-standard condition and protocol. Fortunately, her father Coufal was an early member here and started the Czech version of Cpnhelp, so she had an avenue to find her own help. I've left her very thorough description as she has written it, an amazing job for a non-native English speaker, so that I don't sully the pure charm in her rendition. (Jim K, Editor)

Feelings after 2 years on Weldon’s protocol
Dear “friends”. I am sitting in a train, drinking a good green tea from my thermo pot and writing my story for you, to support you in your bad or maybe even the worst times in your life. I am listening to nice calm music from my headphones and feeling sad and happy in the same time .... I feel like going to cry, when thinking of my past, watching the country through the window.

My diagnosis was chronic fatigue syndromei, chronic glandular fever (kissing disease) and Epstein-Barr virus. A few years later I made a small cheat on my doctor and ticked off a column of cHSP60 in a laboratory application form. It was extremely high + 4,8. But nevertheless, according to my immunei specialist, „I was absolutely healthy man” and this was „just some discrepancy“, because of the values of Chlamydia antibodies IgA, IgGi and IgM, which were boundary ….. so according to my immune specialist „that meant that I was healthy“, even I felt like I was a 80 years old man who was working really hard all of his life and did not sleep for many days.

The „treatment“ was about giving me injections to support my immune system, Isoprinosine etc. Sometimes, I felt better for a while, but later than the worse times were coming more often …. Anyway, I was curious why I was always feeling better when I was on antibioticsi. My condition was better for a few days/weeks but then … it was worse than before the antibiotics treatment. Nowadays, I know the answer ….. That was because of the Chlamydia infection. I remember very well my condition when I was in the Netherlands for an educational stay. I had antibiotics with me from my Czech family doctor as a precaution in case of having complaints there. I used them against angina pectoris and my condition was really bad a few weeks later. Later then I became even sicker. I did not recover from the angina and from one day to another day I had a very bad urethritis (interstitial cystitisi). That was one of my bad times. I was not even able to visit an emergency, so painful it was and so weak was I. In general, I was always sick even from my childhood. When I was a teenager, my body temperature was still around 35,7 and my doctor told me that it was normal at this age. Later than, I had always fever (from 37 to 37,5) and doctors thought that “it was nothing serious” ..... To be still sick and feel sick was normal according to the doctors. I knew there was something wrong but I still trusted to my doctors ... what I could do more in my age ..... but it was just wasting of time.

I argued with my immune specialist MUDr. Naděžda Švideková, at a famous big Prague hospital, which is known as one of the best in the Czech Republic.... I was angry that it was not really normal to feel like I was dying every day and was not able to climb up a few stairs or run a few metres to catch the bus... or when I was standing for a while I fainted. I was really not a young lady, I was a human wreck. I could not do anything, I could only sleep. No, even sleeping was a big problem for me; I was waking up because of the pains. Would you like to know my immune specialist’s answer? Really? Well. She recommended me to prepare myself on “being in disability pension” ... and recommended me to stop my university studies. According to her I was only torturing myself,..... And what more .... she was pretty sure I would not be able to finish my studies successfully .... because of my “incurable condition”. And the last “pearl at the end” of our appointment was that “even in disability pension is really possible to live a very nice full featured life” .... Oh My God, I was only 22 years old, when I got these recommendations from “my doctor, whom I trust to”. Other of many of my “nice” experiences with doctors was in another big hospital, at infection department. I came there to having done test for Chlamydia. An old doctor sent me to a mental specialist even she did not know me .... only after a few minutes in the surgery. According to her I was a mad person, who made up everything.... She was looking through the window and did not look at me..... She turned to me just after a few seconds of my speech and told me her viewpoint. And what more...... she was familiar only with the Chlamydia trachomatis, as almost every doctor, so she was looking at me as I would be a prostitute. “Some Chlamydophyla pneumonia was something strange what they have heard for the first time about from me. No comment ... there is no place to comment it, I can say. Even I had plenty of medical reports from emergencies because of my collapsing. Doctors did not care about my jumping heart pulse ...... doctors had always the answer ..... “There is no need to be worry that is normal. You study at university.... so that is really a strong stress ..... when we were students, we were also under such a pressure and were having complaints.” Once my problems were because of ”the exam period”, once because of “the late shock after exam period” ...... they always had the answer.

What seems funny nowadays to me is an advice from my father’s schoolmate, who is a good orthopaedist. He advised me, when I was 21 years old and studying the first year of university, that „I should have a baby“ .... He was sure that it would solve all my complaints that it was because of some hormones. I thought he drove himself insane ... That was an advice from my father’s good friend ....who was a doctor. Is not it „funny“? I think that it is rather to cry. Stupidity rules the world.
Doctors were set against „reading nonsense from the Internet“, when I was referring to many stories and facts from www.cpnhelp.org< and new scientific research studies for example at the University of Vanderbilt. They usually recommended me to visit a mental specialist and start using medical pills against depression. That is a new world’s trend among doctors how to “treat” patients, I guess. “Having subjective symptoms? Use these pills, it will calm you down. You will not watch yourself so much ….”

Doctors argue: “That was not written in the books we had at university when we were students, so Chlamydia cannot cause your complaints that is only your subjective feelings!!!” Usually the patient has the feeling that the doctor wants to say “I am the doctor, I know everything, you do not understand anything, I have the diploma, I know everything, so shut up and do what I recommend to you!” My immune specialist told me once that I was only a student of agriculture so how could I advice her how she should treat me. This was the “last drop” for me.

So and now something about my start of CAPi treatment and my feelings during the CAP:
It took me around one year to have feelings or to be sure that CAP “is working”. When my father came with the fact I had to start CAP, I “was sure he drove himself insane”. I could not understand him .... To use antibiotics for many months or even years? Oh My God! That must be a stupid unsuccessful joke! But I did not have any other opening. My father told me about Sarah, Jim K. ..... but anyway I still could not believe it.... But after such experiences with doctors I told previously, I decided to “try it”. That time I was sure I did not have much time in front of me ..... I would once collapse and would not “wake up” .... my heart was really weak, it could not stand it for a long time, I am pretty sure with that.

The “moment” I decided to start CAP was one day I collapsed in the underground station when the train was coming into the station. I was falling down directly under the coming train. If there would not be one man and would not catch me .... I do not remember that. I remember only when the train was approaching and I went closer to the rail .... and then only a group of people above me .... I was lying on the floor. They told me that I almost felt under the train, that one man caught me at the really last moment and ripped off me back. That day I really decided I must do something with that by myself, when doctors did not help me. I really did not want to die .... and still do not want!!! I feel to young to die.

I was collapsing very often before the CAP, I can say I do not remember any day to feel well. My heart was still in a strong pain and nobody believed me. “How could you have problems with your heart in your age?” I had painful joints, muscles, head, heart, gallbladder, colon .... all my body was in a big pain .... but the worst was the heart and collapsing. You “can live” with the pain, but you cannot live with collapsing .... My complaints were getting even worse .... still more and more complaints were accumulating like gynaecological complaints, allergic asthmai, allergy (plants, animals, mildew, peanuts, dust, pollen, feather and down as well, microbes,.....), dyspnoea, feelings like lack of oxygen, burning pain of thorax, .... the heart pain was worse and worse and “at the end” before the CAP beginning it was even 24 hours a day ... I was really afraid of my life .... I had depressions, fear,.... feeling of hopelessness ... I felt when my heart “stopped” beating for a few hundredth of seconds and then started to beat like against the time ... many times a day ... I really cannot describe my feelings in those times .... It was the worst time in my life. I was always ill (flu, angina pectoris, common cold, infectionsi,....). My brain was “too lazy”, I could not study, I was drifting off, I did not “understand” anything ..... I almost finished unsuccessfully studies at university .... I was really “out of order”. I felt terribly. I could study and work in the same time a few months/years before .... that was over like I was a really old lady. 16 hours of sleep was not enough for me ....

My blood pressure was jumping from 45/55 to 220/190, heart pulse from 45 to 220 per minute ... and collapsing day by day. Doctors did not believe me even I had tons of announcements from emergencies,..... sometimes I really believed I was a fakir and could influence my organs and stop my heart beating and collapse ... Is not it crazy? I really started to believe I was a madman and hypochondriac.

So I started the CAP treatment. Because it was impossible to get antibiotics, I was “happy” to “gain” even one package of some antibiotics from the Wheldon’s Protocol. I started with Doxycyklin. The first month was terrible, I “got terrible flu” ... no, that was not flu, that was dying of Chlamydia. Then I add Azitromycin ....that was even worse. I started to have depressions, fear of death, all the health complaints were worse than before ....I was really afraid and did not know what to do. But I still trusted to CAP to “be working” and being the “right way” for me. I did not stop .... even my body was “screaming” to STOP ... I trusted and fought. Many nights of crying .... loss of sense of life ... but I could not say my feelings to my doctor or someone else. I did not have any other way and I did not want to die (I am sure I would die without CAP) ... so I pretended to be optimistic, feeling better,... Then some days of “good feelings” appeared and gave me optimistic mood, but immediately after that the worse times came back ......But something inside of my body .... something like instinct whispered me to being on the right way ... My instinct did not disappoint me.
One year later, there was something like a magic turn .... many problems disappeared, I felt very well like a healthy man ... so I continued with the CAP ... and I felt less of complaints month by month. I could study again for my exams, my brain was “fresh” again ...

It is 2 years nowadays since my CAP start. I feel very well ... only sometimes some small pain in my heart and tiredness .... but that is also because of my stress I have nowadays (job, last year ath the university,....). I continue according to Stratton.... hope it will not be necessary for more than one year. We will see.
Nowadays (March, 2008), I feel even better than when I was writing this story. I am finishing university, so I have to make pause with pulses, which made me terribly tired. When I am graduated (in 2 months), I will continue with pulses for a year. I cannot believe that I thought I was healthy when I was a teenager. I have never felt so free and well as I do now.

So, I would like to STRONGLY EXPRESS MY THANKS TO JIM K., SARAH, DRS. WHELDON AND STRATTON. Without these people I would not be so happy (maybe I would not be alive)..... And of course, I have to say "thank you" to my father. He was the man who found this website and decided to try CAP.
List of my previous difficulties which have „dissapeared“ on 2 years of CAP

  • herpes virus
  • condylomata accuminata
  • mycosis
  • acroceratosis/tetter
  • sight setback
  • trichismus, hair and nail fray
  • white nail spots
  • painful muscles, bones and joint
  • head aches
  • painful teeth, very sensitive enamel
  • abnormally sensitive skin
  • bad wound healing
  • Sun allergy
  • pollen allergy
  • furry animals allergy
  • feathers and dust allergy
  • fungi allergy
  • metal allergy
  • asthma
  • painful heart
  • arrhythmia
  • "jumping" heart pulse and blood pressure
  • fainting
  • feeling like going to faint
  • physical and mental exhaustion (I could not step up even 3 stairs only)
  • terrible tiredness (even 16 hours of sleep was not enough)
  • feeling like having lack of oxygen
  • feeling like having something really heavy on my chest
  • lungs burn
  • infancy of disseminated sclerosis
  • stammering, I could not finish my thoughts, I simply forgot some words and could not control myself
  • really terrible memory
  • forgetting of even simple things
  • brain smog
  • feeling of "falling of small stars/snow flakes in front of me"
  • something like small "transparent" worms swimming in my eyes
  • fever, feeling like having a cold
  • fever of 37,2 Celsius degree
  • joints tingle
  • feeling like everything is running from me (PC on my table, books,...)
  • bile stone
  • pain of colon area
  • painful sex and then a few hours of pain
  • very often a tooth decay
  • depression, still fear of "something", feeling of helplessness, aggressiveness
  • being ill very often
  • permanent sore throat (for many years)
  • sometimes arms paralysis
  • joint distortion (knees, hip, shoulder)
  • feeling of vacuum in front of me, like no anchorage in front of me (like being still drunk)
  • stamping over
  • "fat"/swollen face and body (legs especially)
  • "wet", red and painful eyes, still "tired" eyes
  • pale skin
  • stomach complaints (pain like having sores)
  • still having "blocked" vertebras
  • pins and needles
  • sticking in all of my body
  • painful heels
  • still being tired of everything
  • "twitch" in eyes
  • permanent urinary tract infection
  • painful lump in armpit, adenoids,......
  • painful pustule behind ears
  • swollen vulva lips
  • fetid fluor albus
  • yellow-white fur of tongue (Candida?)
  • feeling of having "something" in throat
  • algospasmus
  • pain in legs when sitting
  • swollen and tough fingers and feet
  • sweating
  • pain in spleen area
  • lack of sexual libido
  • pain in navel area
  • "fizzing" and "cracking" in my head
  • ovary cyst
  • permanent need of having something sweet (biscuits, chocolate,....)
  • painful period

......
Nowadays still on CAP, but for a few months without pulses because of my school. Pulses make me terribly tired...... When I am graduated, I will continue for a year full CAP (Stratton) and then I will see ....... hope without any reactions.

Comments

I see I have a new nickname :) Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), the chlamydia heat schock proteini (cHSP60) +4,8. Advice from the doctor: "prepare yourself for a disability pension, it will come soon"

Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

Wow!  That's quite a story.  I am so glad you are well on your way to recovery. 

Congratulations on your completion of your studies!  Now that's a real accomplishment for as sick as you have been.  Many, many congrats.  You deserve high honors for your hard work!

Either do I :) Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever (kissing disease) and Epstein-Barr virus (EBVi), cHSP60 was 4,8.

Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

And you seem to have changed sex too as well as being a mad prostitue. LOL. You really got accused of pretty much everything didn't you. Well done for having the strength to ignore the experts.

I assume you are female? I like to get these thing right. :o)

Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.

NACi 600mg Feb 9th. Increased to 2400mg Feb 19th plus all supplementsi.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started Doxyi 100mg 20th April 2008

Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.

NACi 2400mg. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April

My sex is all right, I am really a young woman, so "the female" sex :) Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever (kissing disease) and Epstein-Barr virus (EBVi), cHSP60 was 4,8.

Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

LOL sorry I hadn't finished posting that and my cat stood on the keyboard so you got half a comment.  

Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.

NACi 600mg Feb 9th. Increased to 2400mg Feb 19th plus all supplementsi.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started Doxyi 100mg 20th April 2008

Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.

NACi 2400mg. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April

 Oops! Sorry Zdenicka! Corrected now.

CAPi for Cpni 11/04. Dxi: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 300mg Roxithromycin, Tinii 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3

 

CAPi for Cpni 11/04. Dxi: 25+yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, restarted Tinii pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Jim, you are busy as a bee! Jan CR /Prague; On CAPs:12/01/2005; 20 years CFSi, then fibromyalgiai; about 10 years chronic sinusitis, laryngotracheitis, from 2002 hoarseness; from 2003 - v.s. lumbosacral meningoradiculitis, hypertension">i. April 08 - still improving

On CAPs:12/01/2005 till March 2013; 20 years CFSi,IBSi, fibromyalgiai; about 10 years chronic sinusitis, laryngotracheitis, from 2002 hoarseness; from 2003 - v.s. lumbosacral meningoradiculitis, hypertension">i... 

There is nothing doing :) hehe. U made me a bricklayer or a small backside (in Czech language) :) So it was funny to read it :) Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever (kissing disease) and Epstein-Barr virus (EBVi), cHSP60 was 4,8.

Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

It is so good to see such heartening progress and such spirit.   Well done Zdenicka, (little bottom) - what else can we throw at you?

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

Zdenicka-Really a nice story. Many similar parts to mine. I would be interested how you do the protocol now. Did you find a doctor finally who supports the CAPi? Also would be nice to see your detailed protocol so far...:)))
doxy200, azith250, NACi 2400, Metroi 1250(once a month), supplementsi, vitaminsi.
Actually I am on Stratton's protocol for about one year already, but since January 2008 without pulses because I am at the point of finishing a university degree and pulses made me too tired (especially with the stress of working on my thesis, having exams, job,... etc.). When I am graduated (June 2008), I will follow the full Stratton's protocol with full pulses for one year. I have 2 doctors prescribing me the protocol (I do pay it, but I am lucky for having at least the prescribtions). Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever (kissing disease) and Epstein-Barr virus (EBVi), cHSP60 was 4,8.

Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

Something optimistic - I graduated last week (M.Sc.). I am sure, it would be a "mission impossible" without the CAPi :) Take care all of you .... Prague, The Czech Republic, on CAP from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

 Congratulations Zdenicka! What a great marker for your continuing recovery. Your father must be very very proud! 

CAPi for Cpni 11/04. Dxi: 25yrs CFSi & FMSi. Currently: 300mg BIDi Roxithromycin, Bactrim DS 2x/day, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3

 

CAPi for Cpni 11/04. Dxi: 25+yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, restarted Tinii pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

 

Well done, Zdenicka!!  I think we are all proud of you.............Sarah

An Itinerary in Light and Shadow...........Completed Stratton/Wheldon regime for aggressive secondary progressive MSi<i< in June 2007, after nearly four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSSi was 7, now 2, less on a good day.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after nearly four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSS was 7, now 2, less on a good day.
Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

It is indeed a proud day for us all when one of us has been able to overcome the destruction that Cpni can cause to a person's life.   Well done Zdenicka, a brilliant achievement.

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

Congradulations,Zdenicka. You won a battle! Cpni didn't defeat you. Combined Antibiotic Protocol minocycline, azithromycin, metronidazolei for muscle pain, insomnia, interstitial cystitisi, sinus, disphonia, dry eyes, stiff neck, veins, thyroid, TMJ.

minocycline, azithromycine, metronidazolei 2007-2009, chelation for lead poisoning, muscle pain, insomnia, interstitial cystitisi (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (no longer hurt)

Good girl!  Now, go do something wonderful with your diploma/degree and your good health! 

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity. 

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity. 

Well done Zdenica an MSc is not easy even if one is totally healthy, but to have done it during your treatment is wonderful. Have a great celebration. <hurray> 

New Forest, UK. Progressive MSi dxi 12/06 LDNi 3/07 CAPi 6/07: Wheldon version. Pulses so far #10

speedbird

Thanks, but without your story, your husband, Jim K. and many others supporting me and my father at the beginning ..... it would never happen. Thank you, again!!! Prague, The Czech Republic, on the CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and active Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

Thanks a lot. But all of U have a big share on it ....... all of U were supporting me so much ...... Thank you. Prague, The Czech Republic, on the CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and active Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

How wonderful!!! Congratulations!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Good Job Z!

MSc, that is super great! & even more so, as you attained it while you have been battling this serious bacteria!

We are proud of you!

CFIDSi/ME 32 yrs, FMSi, IBSi<, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#10 1000 mg 3 days & 750mg 2 days, 5-17-8

CFIDSi/ME, FMSi, MCS, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsi+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyli/day-5 days<

Ooops, so many congratulations ..... I will be growing red :) Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

I am at one year of treatment but going slowly because of my reactions and unusual philosophy of my doc.  I was just sitting here feeling very sick (I started and am increasing in flu symptoms and inflammationi and possible UTIi suddenly) after a few months of improvement and have been worrying and feeling sorry for myself because my doctor is now saying that he does not believe in "die off" and is confusing me about his ideas and about his reluctance to continue the protocol as it is normally prescribed.  Don't ask me what he means about not believing in die off as I don't know at all, because he does believe that the abxi weakens the bugs so your immunei system can kill them.  I am only on doxy and Biaxin now.  

Your story brought tears of joy and sadness and laughter (especially the parts that translated a little different and were cute, like brain smog instead of fog)  to me that was the best medicine I could ever have now.  You encouraged me to keep popping those abxi even when it enters my mind to take a break. 

Like Jim K and Sarah, you are someone who gives me hope, and I admire you for your determination and your wisdom in the face of ignorance. Am am 47 and you are 20 something, but you have become someone that I can look up to as an example. Your example to keep going means a lot to me today and I will not forget tomorrow.   This is an achievement to be proud of.  I have a strong empathy for you and feel we are friends on the same jouney.  Funny how a disease can join us together and make us friends even from great distances.  You are so very fortunate to have a father who looks for answers.

Very best wishes to you and thank you SO MUCH for giving me the encouragement that I needed right now.  I hope to become whole again, but even if I were to fall short because of other bacteria or complications, it is more than I could have asked for to know in my mind that I am actually doing something very wise, intelligent and courageous and that others who have done so have become healthy.  I thank God everyday for allowing me to find an intelligent answer.

Reve' 

Memphis,TN - FMSi, IBSi, rhinitis, depres (~20 yrs) CFSi, intestine, bladder, pelvic inflam., red itchy skin, anxiety (~5 yrs). CPni titer 1:256.  CAPi 6-07 Current NAC 2400 mg; doxy 100 mg x 2, Biaxin 250 mg x 2, supplementsi<

Memphis,TN - FMSi, IBSi, rhinitis, depres (~20 yrs) CFSi, intestine, bladder, pelvic inflam., red itchy skin, anxiety (~5 yrs). CPni titer 1:256.  CAPi 6-07 Current NACi 2400mg; doxyi 100mg x2, Biaxin 500mg x2, supplementsi, 1st pulse Flagy

Zdenicka, many, many congratulations! I am as happy and proud as for my daughter who finished veterinary school 20 years ago. Some accomplishments take incredible determination and yours is a shining example of what is possible for one who will not give up. Have a wonderful life.

 

Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 51 pulses NC USA

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Hope your doctor will become more reasonable and will start studying more about the Cpni very soon ....... I wish you as much of good luck as possible and ..... keep strong!!!!!! Do not give it up .... I did not write any lie, I wrote the hole truth and I will always go for it ... And I am not the only one here .....

Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

thank you :)

Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

Dear all, from today I have started with pulses again. I will let you know if I have any reaction.

Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

Zdenicka,

Such inspiring words from a young woman!  I am awed and proud of you all at once and feel filled with joy!  You are an overcomer and this is very uplifting for all of us.  Kudos to your Father, Coufal for finding and leading and kudos to you for braving and enduring!

You are helping and will continue to help many along their way as well. So happy about your accomplishments.  Congratulations!

You are a blessing to this website!

-kk2 :)

Wheldon Protocol for rrmsi since Oct '05.  Added LDN 4.5mg qhs Oct '07.  All supp's.  Positive IGGi's for Lyme Disease,Babesia, & Erlichiosis Sept. 2008.  Currently:  Mepron 750mg bid and Azithromycin 250mg qdi for Babesia.

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