Hello, I hope everyone is having success with there protocolsi. I just had a couple of questions if anyone could answer. Is there a gene to test for the suseptability of a person to get cpni? I have read stories of people having cpn for 3-6 months and they got better. Some doctors call it Rieters syndrome. Anyone else have a doctor tell them they had Rieters? Also I know the Docs say 3-5 years is how long you should stay on the protocol? Should there be no symptoms left in order to go of the protocol COMPLETELY! and what if you feel fine after 1 year of the protocol? Should you go off of the protocol then? It would scare me to even go of the protocol becuase of a possible serious relapse. I definitly dont want to suffer another one of those from my month long of levequin. Other then that I am feeling better after just a little over 2 weeks of the protocol. No more heart palpitations and flu like symptoms but still fatigue and depression are the major ones along with the urithritis, arthritis, and prostitis which have subsided a bit. I guess I should go back on my Zoloft until my symptoms approve. I know a lot of people here have it a lot worse then me and I pray for them every day. May god comfort us everyday in getting better.
Lee
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Fibro, CFSii, Myco, CPNi, Wheldon protocol, Zithro 250mg M/W/F/S, Doxyii 100mg 2x day, NACi 1200mg 2x day, Flagylii pulses 400 mg 3x day
Lee- you stay on the
Lee- you stay on the protocol until you are no longer reacting to anti-chlamydials like flagyli, rifampin, etc.. Then Dr. Wheldon has recommended going to an intermittent protocol for 6months to a year, essentially dual antibioticsi and flagyl for 7 days a month. Continue to take NACi for the rest of your life. Stopping is not based on symptoms, it's based on reaction to the antibiotics. Symptoms are not an acurate read on this because some may be from other causes or from damage due to long term inflammationi.
CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 300mg Roxithromycin, Tinii 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3
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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3
> Is there a gene to test
> Is there a gene to test for the suseptability of a person to get cpni?
Great question! The closest thing we have is the APOE gene test (which is also used to indicate susceptibility to alzheimer's). There is work indicating that people with the E4 variation of this gene are more susceptible to Cpn. However this is all theoretical. I tested "normal", i.e. E3, E3. Yet the progression of this disease has been relentless in my case.
I wonder if everyone on this site got tested what kind of distribution we would find.
CFSi. Started CAPi 03-07. Currently: Roxi 600mg + Doxyi 200mg . Tinii pulses 1000mg. Sauna QOD. D 8000IU. Niacini 3 x 500mg. Mel 3mg.
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Hunter: Don't think - experiment