A Committee of One of Three of Many

Today I am eighty days post twenty-six day flagyli pulse and though I have not been around the world, I feel as though I have climbed my share of mountains. I was going to do another long pulse in January but have postponed it for two reasons: the first reason is that I have noticed, as have many of us, that the longer and more intense the pulse, the longer the recovery. It has been no exception with this extended (for me) one. I find this as a signpost for us - don't feel that "this is not working" if you choose to go outside the boundaries of the written protocol. This applies with the regular protocol, also, especially early on when this foe is lining up its defenses. We are writing in blood the new rules. Flagyl flattens our emotions and our intellects in unscripted ways, but in my own forty months, if my experience is representative, our bodies float to the surface, take a deep breath, and begin another long swim to a sometimes temporarily out-of-reach shore. But even that shore is attainable. Steven Callahan, a remarkable sailor, reached it after seventy-seven days adrift. He is very, very tough - and smart - and patient.

My recovery after this long pulse has led to a delightful month of terrific daily normal life. To help in "rebuilding new pathways" - which can REALLY happen, I began Pilates and am on the second level - "Beginning Mat Work". I think this was invented for us whose numbed, now slowly reconnecting, muscles have turned to mush. It zeroes in on and targets exactly those muscles. I discussed with an MSi friend yesterday how often I do this and, thinking about it, realized that I had done it five days out of seven this week, and the week is not over yet. That is probably a little higher than my usual average of closer to three or four times a week. After beginning the very basic tape in November, which I did as often as I could, I have tried to increase the schedule, at the same time keeping up my walking or elliptical, doing one or two of the three every day. This leads me to the second reason for this blog. Next Wednesday I will have a double mastectomy. This will make me at least the third female on this site to have cancer or pre-cancer. I have DCIS (ductal carcinoma in situ) on the left. They will take the lymph nodes to examine in the hope that the malignancy is confined. It will be a double mastectomy because there is a 50% chance of cancer on the other side. This surgeon did my biopsy of a year and a half ago (negative) and has watched my progress with interest. His daughter is a patient of my husband's. I will miss no days of my abxi or my supps, though they may not be on my regular schedule.

Comments

Rica - I am overjoyed to

Rica - I am overjoyed to learn the cancer had not spread and that they got it in time!  This is really excellent news! 

I hope the pain from surgery is manageable and over quickly. 

You are a beautiful and amazing soul and a treasure to all here!

Daisy-Caregiver- Balo's Concentric Sclerosis.  CAPi 5/10/07.  Minoi 100 BIDi 9-1,  Roxy 300 BIDi 11-5, Rifampin 600mg QDi 10-15, Bactrim DS BID 11-3, Diflucan 100mg BID 11-30, Novantrone, Doxyi, Azith

Daisy - Husband on CAPi 5/07.  Husband died from Acute Myelogenous Leukemia Secondary to the Infusion of Novantrone.  Ie - the treatment with the conventional MSi drugs killed him.

Daisy on her own CAP 11/2012. 

Rica, it is wonderful you

Rica, it is wonderful you are already delivering milk and able to write online. The people of this site are sending you much love. And through this you have continued posting words of encouragement to others. Combined Antibiotic Protocol minocycline, azithromycin, metronidazolei for muscle pain, insomnia, interstitial cystitisi, sinus, disphonia, dry eyes, stiff neck, veins, thyroid, TMJ.

minocycline, azithromycine, metronidazolei 2007-2009, chelation for lead poisoning, muscle pain, insomnia, interstitial cystitisi (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (no longer hurt)

Hi friends, It's great ro

Hi friends, It's great ro be home - I will be watching from closeup while Richard is doing all the work. Having been on the opposite side for a while, I can tell you from the heart that it is better being up and around - not all the way yet, but getting there! Thanks again - I am going to be saying thank you for the rest of my life to the people here and here in my physical world for everything that has been done for me in the last few days! Hope everyone is well! Glad you're aboard. marj!

 

Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 48 pulses NC USA

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

It is great you feel well

It is great you feel well enough to be on-line! So thankful and wishing you speedy recovery. On Wheldon protocol for MSi since April, 2006.  doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDNi 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30.

5oo mgs Ceftin 2 x/day, 500 mgs Zithromax, 500 mgs 2 x tinii pulses,100 mg diflucan, 4.5 ldni; Wheldon protocol for MSi April, 2006 to May 2008. 2008 MRI shows NO NEW DISEASE ACTIVITY, 2012 MRI no new disease activity.

All, I just called

All,

I just called Rica; she is home and is doing very well.  The surgeon was able to remove all the affected tissue and the pathology report was good.  The lymph nodes were clear so they caught it in time.  She and Richard were heading out to deliver some goat milk to the animal shelter.  Yea! 

Brian

ExRacer MS diagnosed in 2002.  EDSSi: 6.0.  2400 mg NACi, 500 mg/day Levaquin 9/10/07 t/ru 11/25/07, Doxyi 200mg/day since 11/29/07. Azi since 12/6/07. Added other recommended supplementsi in December.  On third day of 1000 mg Flagyli.

ExRacer - MS dxi 2002.  EDSSi: 6.0.  LDN since 2004, NACi, Doxyi, Azi MWF, Recommended supplementsi.  Completed Flagyli pulse 22 on 10/26/09. 

Rica,  You are truly a

Rica,  You are truly a phoenix, now flying on milk runs.  We are not indestructible beings, but you're the closest thing to it I've ever known.  This is yet another bad thing that happened to a good person.  I don't think you're a disaster magnet, though you've been dealt at least a couple of bad hands in life.  People like you are paragons for the rest of us to look to when we feel overwhelmed by our own disasters.  While I hate that this has happened to you, I'm not worried about you, not you the vanquisher.  I hope you regain full use of your arms and hands as soon as possible and stay cancer-free forever.

Richard,  Bless you for your love, devotion, and caregiving.  Thanks for acting as Rica's Cpnhelp proxy too.

God bless both of you and your herd, 

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAPi since August 06, Cpn, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity. 

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity. 

Just returned from a short

Just returned from a short visit to my mother and am delighted to read this great news here.   Get better quickly Rica, what a relief for you both...

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

Rica,  Do know you are held

Rica,  Do know you are held lovingly in my prayers as you go through this.  You obviously have what it takes to heal from this too, and I am awed at your strength and wisdom.

Love and Blessings,

 

DD

Dxi:CFSi/ME;CPni;Post Polio:  On CAPi since 3/05. Azith 500mg MWF, Doxyi 200mg bidi, NACi 1200 mg bidi, Calcium Pyruvate 488mg/2.1GM bid, flagyli pulses, (gobs of activated charcoal), B6, Magnesium, Iodine.

DD

Dxi:CFSi/ME;CPni;Post Polio:  On CAPi since 3/05. Azith 500mg MWF, Doxyi 200mg bidi, NACi 1200 mg bidi, Calcium Pyruvate 6GM bid, flagyli pulses,  B6, B12, Magnesium/Potasssium 2400/400 dly, Magnascent, Cholestyramine, D3 2GM dly, .

R & R, Great news about the

R & R,

Great news about the lymph nodes, woo whoooo!!

I am exhaling now & will continue my prayer vigil for the best speedy recovery!  After all, there are chores to do--champions to feed, groom & milk.  Look out Nationals!

Cool

CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonin">i, GABA, tarazadone, triazolam, novocyclopine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 1-3-08 5th pulse 1 X 375 mg 4day

CFIDSi/ME, FMSi, MCS, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsi+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyli/day-5 days<

Rica, you are so tough and

Rica, you are so tough and tender, both. I'm praying for your speedy return to your normal frenetic pace.

 Ron

On CAPi for CFSi starting 01/06 (NE Ohio, USA)

Currently: doxyi & zithi -- continuous; metronidazolei -- 5 days on, 7 days off.

Get the research results you paid for: support Open Access

Ron

On CAPi for CFSi starting 01/06 (NE Ohio, USA)

Began rifampin trial 1/14/09

Currently: on intermittent

Richard and Rica So much

Richard and Rica

So much relief.

Barbara

Used to have multiple sclerosis, on the intermittent Wheldon protocol since March 2006, EDSSi 0 for over 4 years

Cured of multiple sclerosisi, stopped the Wheldon's protocol in Nov,2008. Use only LDNi.

C'est magnifique! Mazel

C'est magnifique! Mazel tov!

Nancy

PPMSi-misdiagnosed 5 years-diagnosed last spring. Minocycline 7 mos.- resulting bronchitis 5 months. Talked Hopkins neuroi. into: HRT (estriol and progesterone as neural protectant re Voskuhl,UCLA).Wheldon CAPi 3/2/07 - 200 doxyi; azith MWF. Rockville,Md.

PPMSi-misdiagnosed 2001-diagnosed 2006. Probably caught cpni in birth canal but it didn't pass BBBi until my 40s. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAPi 3/2/07 Stopped 12/12; resumed 12/13

Richard and Rica, So happy

Richard and Rica, So happy to hear the good news! This must be such a relief. Give Rica a kiss from me! -kk2 :)

 

On Wheldon regime [Doxyi, Azith, and Flagyli]  for rrmsi since October '05.&nbsp Added Amoxicillini 1gm twice daily and LDNi 4.5mg qhs October '07; EDSSi was 6.5, now 5.5.  United States.

Wheldon Protocol for rrmsi since Oct '05.  Added LDN 4.5mg qhs Oct '07.  All supp's.  Positive IGGi's for Lyme Disease,Babesia, & Erlichiosis Sept. 2008.  Currently:  Mepron 750mg bid and Azithromycin 250mg qdi for Babesia.

Hi Richard, This is

Hi Richard,

This is absolutely wonderful news.  Thanks so much for posting it.   Please give Rica our best, and be sure to let her know we're all hoping she has a swift recovery. We miss her already!

Take care of yourself as well...

On Combined Antibiotic Protocol for Cpni in Rosaceai 01/06 - 07/07, On Vit D3 + NACi since 07/07 and daily FIRi Sauna since 08/07

Treatment for Rosaceai<

  • CAPi:  01/06-07/07
  • High-Dose Vit D3, NACi:  07/07-11/08
  • Intermtnt CAP, HDose Vit D3:  11/08-01/09
  • HDose Vit D3, Mg, Zn: 01/09-

It's such a relief to get

It's such a relief to get the good news so soon. Thankyou Richard for thinking of us and lots of love to Rica.

Carol 

New Forest, UK. Progressive MSi dxi 12/06 LDNi 3/07 CAPi 6/07: Wheldon

speedbird

Thank you for this

Thank you for this wonderful news, Richard. I was literally weeping tears of joy for Rica when I read this!!! Hope that she is now resting well. And, that you are, too, --Minai RRMSi, diagnosed 2/04. NACi 4/06. Started Wheldon/Stratton regime 8/30/06. Doxycycline, 8/06, Azith, 10/06. Switched to Roxithromycin 11/06. Psuedo relapse/die-off with hospitalization 1/07. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY Restarted CAPi with NAC and Doxy 2/07. LDNi 4/07. Stopped NAC, started Roxi, again 5/07. Now on full doses of Doxy and Roxi. NAC, again, 7/07. 1st Tinidazole Pulse, 8/11/07. USA

Richard, Great News!

Richard, Great News! Thanks for letting us know. On Wheldon protocol for MSi since April, 2006.  doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDNi 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30.

5oo mgs Ceftin 2 x/day, 500 mgs Zithromax, 500 mgs 2 x tinii pulses,100 mg diflucan, 4.5 ldni; Wheldon protocol for MSi April, 2006 to May 2008. 2008 MRI shows NO NEW DISEASE ACTIVITY, 2012 MRI no new disease activity.

hi all rica's surgery went

hi all rica's surgery went well today. no spread of cancer to lymph nodes. good news! thank you for all your support and caring. richard < p> 

Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 48 pulses NC USA

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Rica and Richard - Also

Rica and Richard - Also thinking of you today...

Daisy-Caregiver- Balo's Concentric Sclerosis.  CAPi 5/10/07.  Minoi 100 BIDi 9-1,  Roxy 300 BIDi 11-5, Rifampin 600mg QDi 10-15, Bactrim DS BID 11-3, Diflucan 100mg BID 11-30, Novantrone, Doxyi, Azith

Daisy - Husband on CAPi 5/07.  Husband died from Acute Myelogenous Leukemia Secondary to the Infusion of Novantrone.  Ie - the treatment with the conventional MSi drugs killed him.

Daisy on her own CAP 11/2012. 

Thinking of you today Rica

Thinking of you today Rica and Richard.....

Elinor ..... from England  on CAPi, doxyi/roxi/tini  for ME/CFSi/lyme borreliosis, positive Cpni and borrelia. Started Aug05, stopped Jan06, started again Sept 06.

Elinor ..... from England  on CAPi, doxyi/roxi/tini  for ME/CFSi/lyme borreliosis, positive Cpni and borrelia. Started Aug05, stopped Jan06, started again Sept 06.

Richard will be posting

Richard will be posting today or tomorrow, so stay tuned to this channel...

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Rica, my prayers and

Rica, my prayers and thoughts are with you. You are a champion in every way. Combined Antibiotic Protocol minocycline, azithromycin, metronidazolei for muscle pain, insomnia, interstitial cystitisi, sinus, disphonia, dry eyes, stiff neck, veins, thyroid, TMJ.

minocycline, azithromycine, metronidazolei 2007-2009, chelation for lead poisoning, muscle pain, insomnia, interstitial cystitisi (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (no longer hurt)

Rica and Richard, I am

Rica and Richard, I am thinking of you two and hoping/praying for the best possible news. May your Wednesday be filled with the best possible outcome! Please do let us know how you're getting on. I am all smiles, for Rica! :) -kk2 :)

 

On Wheldon regime [Doxyi, Azith, and Flagyli]  for rrmsi since October '05.&nbsp Added Amoxicillini 1gm twice daily and LDNi 4.5mg qhs October '07; EDSSi was 6.5, now 5.5.  United States.

Wheldon Protocol for rrmsi since Oct '05.  Added LDN 4.5mg qhs Oct '07.  All supp's.  Positive IGGi's for Lyme Disease,Babesia, & Erlichiosis Sept. 2008.  Currently:  Mepron 750mg bid and Azithromycin 250mg qdi for Babesia.

Hugs, hugs, and more hugs,

Hugs, hugs, and more hugs, Rica! Am thinking of you, tonight, and wishing you the best, for tomorrow.

 

Thoughts and prayers and much hope for the best prognosis! Am sure we'll see you back in fighting spirit, sooner than we think!

 

--Minai

 

RRMSi, diagnosed 2/04. NACi 4/06. Started Wheldon/Stratton regime 8/30/06. Doxycycline, 8/06, Azith, 10/06. Switched to Roxithromycin 11/06. Psuedo relapse/die-off with hospitalization 1/07. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY Restarted CAPi with NAC and Doxy 2/07. LDNi 4/07. Stopped NAC, started Roxi, again 5/07. Now on full doses of Doxy and Roxi. NAC, again, 7/07. 1st Tinidazole Pulse, 8/11/07. USA

Rica- You even got a rare

Rica- You even got a rare post from Ella--- you rate! I love her tag line: Fortune favors the brave. May it be so. 

CAPi for Cpni 11/04. Dxi: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 500mg MWF Azith, Tinii 1000mg/day pulses; Vit D1000 units, Cytotec 100mg, Plaquenil 100mg, Magnascent Iodine 12 drps/day, T4 & T3

 

CAPi for Cpni 11/04. Dxi: 25+yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, restarted Tinii pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Healing thoughts Rica, sleep

Healing thoughts Rica, sleep well.

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

Rica, Holding you with

Rica, Holding you with thoughts of wholeness.

Louise

  • CAPi(TiniOnly): 06/07-02/09 for CFSi<
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support
  • <

  Rica, very best of luck:

 
Rica, very best of luck: you'll come out of this fighting and ready for the Nationals........Sarah
  
An Itinerary in Light and Shadow...........Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSSi was 7, now 2, less on a good day.
Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Rica, I had insomnia last

Rica,
I had insomnia last night (ate some really dark chocolate after dinner) and spent the time doing what I could to set the universe right for you, to get your qi going and bring apoptosisi on the nasty cancer cells. It's not much, but it's all I can do and will keep on doing it in case it might have some effect other than allowing me to feel that I'm doing something. I.E sending good vibes your way and wishing you the very very best. My "prayers" will be with you tomorrow.

Nancy

PPMSi-misdiagnosed 5 years-diagnosed last spring. Minocycline 7 mos.- resulting bronchitis 5 months. Talked Hopkins neuroi. into: HRT (estriol and progesterone as neural protectant re Voskuhl,UCLA).Wheldon CAPi 3/2/07 - 200 doxyi; azith MWF. Rockville,Md.

PPMSi-misdiagnosed 2001-diagnosed 2006. Probably caught cpni in birth canal but it didn't pass BBBi until my 40s. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAPi 3/2/07 Stopped 12/12; resumed 12/13

Rica, I quickly signed into

Rica,

I quickly signed into the sight to take a few minutes for reading.  I saw your post & clicked it though it was big. 

Like others, I was reading along with a smile on my face & then BAMM, no more smile & tears.

Life is full of challenges & you have a brave posture for this one.  I cannot begin to imagine what you must be going through.  This battle will leave scars for which you seem to be prepared.  You are a very brave Samurai spirited warrior.

Everyday you all are in my prayers.  You are a champion Rica.

Kiss& big hug

CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonin">i, GABA, tarazadone, triazolam, novocyclopine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 1-3-08 5th pulse 1 X 375 mg 4day

CFIDSi/ME, FMSi, MCS, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsi+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyli/day-5 days<

 Rica, I just wanted to let

 Rica, I just wanted to let you know you are in my thoughts and prayers, especially tomorrow...please ask her husband, when he has a few moments, to send us a quick update on how you are doing..

Mphs, TN. CFSi, hypoT (Hashi), weak adrenals, 37 w/hormones of 80 yo. right arm neuropathy. + for cpni, myco, EBVi, CMV. on NACi 3600mg, doxyi 100-2xday, azith 250 m/w/f, estriol, progesterone, synthroid, and pulsing w/flagyli.

Mphs, TN. CFSi, hypoT (Hashi), adrenal fatigue, hormonal inbalance. right arm neuropathy-getting better. cpni, myco, EBVi, CMV, HHV-6. Capi began in 6/07. NACi 2400mg, minoi 100mg bidi, biaxin 500mg bidi. cytomel, flagyli bid continuously.

Rica, my prayers are with

Rica, my prayers are with you.  I can't begin to share ...., don't know how to help a superhero.  I have a very strong respect for your determination and fight.  While it must be tough to be positive, I hope you can bring our collective insiration with you on Wednesday.  Ken

In pursuit of ABX<

Don't Allow What You Know To Get In The Way Of What Might Be

Rica, Life sure doesn't seem

Rica,

Life sure doesn't seem fair at times, but then, as my Mother always told me, no one ever promised it would be.  You certainly have been dealt more than your share of tough times.  You are a shining light of courage and determination to all you know you.  I will say extra prayers for both you and Richard.  Marion (Brian's wife)

 

ExRacer MSi diagnosed in 2002.  EDSSi: 6.0.  2400 mg NACi, 500 mg/day Levaquin 9/10/07 t/ru 11/25/07, Doxyi 200mg/day since 11/29/07. Azi since 12/6/07. Added other recommended supplementsi in December.

ExRacer - MS dxi 2002.  EDSSi: 6.0.  LDN since 2004, NACi, Doxyi, Azi MWF, Recommended supplementsi.  Completed Flagyli pulse 22 on 10/26/09. 

Rica, My thoughts and

Rica, My thoughts and prayers are with you. I agree with Karen you are one tough cookie. You will overcome this and be at the nationals. Lee sjogren's diagnosed 2/03, 200mg minocin daily, mwf zithromax, flagyli every 3 weeks.

200mg doxyi daily, 500 zithromax mwf,flagyli 1000 m-fri.rifampin 2x daily,chloestryramine 2x daily

I am sorry that you have

I am sorry that you have been faced with this.  I commend your courage and facing it 'head on' and with your 'head held high'.. 

Mphs, TN. CFSi, hypoT (Hashimotos), weak adrenals, 37 w/hormones of 80 yo. right arm neuropathy. + for cpni, myco, EBVi, CMV. on NACi 2400mg, doxyi 100-2xday, azith 250 m/w/f, and pulsing w/flagyli, estriol, progesterone, synthroid

Mphs, TN. CFSi, hypoT (Hashi), adrenal fatigue, hormonal inbalance. right arm neuropathy-getting better. cpni, myco, EBVi, CMV, HHV-6. Capi began in 6/07. NACi 2400mg, minoi 100mg bidi, biaxin 500mg bidi. cytomel, flagyli bid continuously.

Hey Rica, The original

Hey Rica, The original gutsy lady. Fortune favors the brave. My thoughts are with you. Ella Ella- thrill seeker extraordinaire.  RRMS, on Wheldon protocol since 17th March 2006
Ella- thrill seeker extraordinaire.  SPMS, on Wheldon protocol since 17th March 2006

I felt like I got kicked in

I felt like I got kicked in the stomach when I read you have cancer. My thoughts and prayers are with you. I am angry this happened to you. You've already displayed the courage to conquer cancer too. Combined Antibiotic Protocol minocycline, azithromycin, metronidazolei for muscle pain, insomnia, interstitial cystitisi, sinus, disphonia, dry eyes, stiff neck, veins, thyroid, TMJ.

minocycline, azithromycine, metronidazolei 2007-2009, chelation for lead poisoning, muscle pain, insomnia, interstitial cystitisi (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (no longer hurt)

Rica, yours was the first

Rica, yours was the first story I read when arriving here in the depths of my MSi diagnosis and I thought then that you had true grit. Now I know that you do - along with the many other pathfinders here.

Last night we were reminded of the bravery of Sir Edmund Hillary and Sherpa Tensing conquering Everest (without cellphones!) and I thought of you. If anyone can get to the top of this climb, then you can...your goats leading the way of course.

Fingers and everything else crossed for you on Wednesday. Carol

New Forest, UK. Progressive MSi dxi 12/06 LDNi 3/07 CAPi 6/07: Wheldon

speedbird

Hell's bloody bells Rica,

Hell's bloody bells Rica, your calm strength and determination amaze me once again, you CAPitulate to nothing!

I will be putting all my energy into good thoughts for you and Richard on Wednesday and you will have the prayers and love of many strong people on here behind you.

Elinor ..... from England  on CAP, doxyi/roxi/tini  for ME/CFSi/lyme borreliosis, positive Cpni and borrelia. Started Aug05, stopped Jan06, started again Sept 06.

Elinor ..... from England  on CAPi, doxyi/roxi/tini  for ME/CFSi/lyme borreliosis, positive Cpni and borrelia. Started Aug05, stopped Jan06, started again Sept 06.

Rica, I too am so sorry to

Rica,

I too am so sorry to hear this news, Rica.   I have great faith that you will be just fine, but please take care.   We are all pulling for you...

 

On Combined Antibiotic Protocol for Cpni in Rosaceai 01/06 - 07/07, On Vit D3 + NACi since 07/07 and daily FIRi Sauna since 08/07

Treatment for Rosaceai<

  • CAPi:  01/06-07/07
  • High-Dose Vit D3, NACi:  07/07-11/08
  • Intermtnt CAP, HDose Vit D3:  11/08-01/09
  • HDose Vit D3, Mg, Zn: 01/09-

Rica, Good luck to you, you

Rica, Good luck to you, you are a tough cookie. It was quite a shock for me also to read the "Wednesday...." sentence. Wow. Let us know as soon as you can how you are doing. Karen Capozza x msi 1996. started cap 10/05. Started with tinii pulses switched to flagyli pulses. Now almost on continous 500mg flagyl but do need breaks. On doxyi 200mg/day azith 250 mwf and NACi 700mg. ldni 2.0mg.
dxi msi 1996. started capi 10/05. Started with tinii pulses switched to flagyli pulses. Now almost on continous 500mg flagyl but do need breaks. On minoi 100mg/day biaxin 1000mg day and NACi 600mg. ldni 2.0mg.

 Well Rica, you are such a

 Well Rica, you are such a stalwart for me that I felt as if I'd walked into a wall when I read the latter part of your blog. Blast! Darn! Consarn it! I'll be thinking of you now through Wednesday at least.

Much love to you and Richard... 

CAPi for Cpni 11/04. Dxi: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 500mg MWF Azith, Tinii 1000mg/day pulses; Vit D1000 units, Cytotec 100mg, Plaquenil 100mg, Magnascent Iodine 12 drps/day, T4 & T3

 

CAPi for Cpni 11/04. Dxi: 25+yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, restarted Tinii pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Rica, I'm sitting

Rica, I'm sitting here dumbfounded with my mouth open  re your email and the news of your surgery. ...... Since I came to this site you were (are) always one of the first to offer support or jump in to give advice... I'm sorry you now have to endure this. 

I am marking my calendar as well -- you will be my in my thoughts and prayers.

Jeanne

 

Jeanne ~CPN  4/2007; HHV6, EBVi, CFIDS/FM- diagnosed '07; IBSi, prior kidney infectionsi, food allergies, hypothyroid (RAI for Graves in 1998), Adrenal issues (hypo); prior bronchitis/sinus problemsi. 200 mg/doxyi daily & 250 mg AZITH M/W/F, supplement

JeanneRoz ~ DXi'd w/ CPNi 4/2007; 6/07 -"officially" dx'd w/CFIDSi/FM; also: HHV6, EBVi, IBSi-C, 100 Doxyi:BIDi<; 500 mg Biaxin BIDi; Tindamax Pulses, B12 shots, ERFA Dessicated Thyroid,Cortef, Iodoral 25 mg, Vit D-6,000 uni

As always, I am surprised

As always, I am surprised at the responses here. I shouldn't be - after all, we are engaged in life-threatening struggles every day. This is the most wonderful community of warm, intelligent, and funny, funny people. I really hope we are able to come together some day. To serious stuff - I haven't told Richard about this blog. He is greatly affected and worries much more about me than I do. There is nothing I can do about this except hope to come out of it ok. How can I miss with all of you behind me? Thanks -

 

Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 48 pulses NC USA

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Rica, So awful and not

Rica, So awful and not fair, you caught me off guard with your news as well. You are a hero and will pull through with your attitude that keeps us all going. I will be praying for you as well on Wednesday and if Richard can let us know how you are doing we would appreciate it. On Wheldon protocol for MSi since April, 2006.  doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDNi 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30.

5oo mgs Ceftin 2 x/day, 500 mgs Zithromax, 500 mgs 2 x tinii pulses,100 mg diflucan, 4.5 ldni; Wheldon protocol for MSi April, 2006 to May 2008. 2008 MRI shows NO NEW DISEASE ACTIVITY, 2012 MRI no new disease activity.

Rica, I was just talking to

Rica, I was just talking to a friend who had this surgery a year ago. She is doing very well now. It took a while for her to get back to work but she was on a healing path. I am wishing the best for you. Such a courageous fighter you are! Another miracle of healing is waiting for you. I will be thinking of you, dear friend. Blessings and healing to you, Raven CAPi since 8-05 for Cpni and Mycoplasma P. for MSi and/or CFSi

Feeling 98% well-going for 100. Very low test for Cpni. CAPi since 8-05 for Cpn/Mycoplasma P.,Lyme, Bartonella, Mold exposure,NACi,BHRT, MethyB12 FIRi Sauna. 1-18-11 begin new treatment plan with naturopath

Rica, oh Rica, All of the

Rica, oh Rica,
All of the above plus. Your courage is amazing. I will also be thinking of you next Wednesday and will have you in my prayers.

Nancy

PPMSi-misdiagnosed 5 years-diagnosed last spring. Minocycline 7 mos.- resulting bronchitis 5 months. Talked Hopkins neuroi. into: HRT (estriol and progesterone as neural protectant re Voskuhl,UCLA).Wheldon CAPi 3/2/07 - 200 doxyi; azith MWF. Rockville,Md.

PPMSi-misdiagnosed 2001-diagnosed 2006. Probably caught cpni in birth canal but it didn't pass BBBi until my 40s. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAPi 3/2/07 Stopped 12/12; resumed 12/13

Oh, hell. I was smiling,

Oh, hell. I was smiling, smiling, smiling, already formulating a reply in my head about how you are clearly getting younger by the minute, then wham. Kicked in the stomach, all air taken from my lungs. SO not fair. If I were closer, I'd feed and milk FOR you for a month, I swear. Since I'm not, I will sit in a quiet place on Wednesday and direct good, positive energy to you. (Inform Richard he will be hounded mercilessly until he gives us an update.)

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Rica, I agree with Michele,

Rica, I agree with Michele, heroes and heroines abound on this site. From what I gather, you likely have caught this in time to come out relatively unscathed, that is after the procedure. You and Richard have been in my thoughts and prayers in hopes for the confirmation of what you want to hear, and for a speedy recovery after the fact. You are a guiding light and a brave soul and will endure;and I don't say that just because we need you so much, but that your goats do, too! -kk2 :)

 

On Wheldon regime [Doxyi, Azith, and Flagyli]  for rrmsi since October '05.&nbsp Added Amoxicillini 1gm twice daily and LDNi 4.5mg qhs October '07; EDSSi was 6.5, now 5.5.  United States.

Wheldon Protocol for rrmsi since Oct '05.  Added LDN 4.5mg qhs Oct '07.  All supp's.  Positive IGGi's for Lyme Disease,Babesia, & Erlichiosis Sept. 2008.  Currently:  Mepron 750mg bid and Azithromycin 250mg qdi for Babesia.

Good God, this site breeds

Good God, this site breeds heroes, this is the second time today that i'm thinking this.   Not a note of self pity, here.   Rica your great spirit will get you through this as it has got you through everything else you have endured.  

(My recovery after this long pulse has led to a delightful month of terrific daily normal life.)  Great example of living in the moment with your best physical outcome in mind and how to exercise to maximise your recovery.

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.