Cpnhelp.org

Hi! i just wanted to say that I have had tremendous and life altering improvement using only vitD3 and NACⁱ.

I am not in the medical field and can hardly understand half of the things that I read on this forum, so I dont completely understand why it is working, and whether or not it is eliminating it or  just holding it at bay...but when it comes to rosaceaⁱ, seeing is believing and my rosaceaⁱ is gone!!!

My rosacea was not just a red flush, it was alot of pustuals, and scaling of skin which I think might have been a secondary yeast overgrowth, red broken veins showing, itchy, lumpy texture, and overall redness and heat to the skin.  It progressed over 5 years and got to the point that there was no makeup that could make me look normal. I had to change jobs so that I was not in the public eye. I would opt not to go out on the weekends because my house was the only place I felt comfortable. Hidden.

My skin is completely healed now and I dont  wear makep at all, except for special occasions. Its normal looking and cool to the touch!!!  I am still on the vit.D3 and NAC and that is where I AM STAYING!!!

If I told people outside of this forum the high dosages I am taking I think I would scare them...and I guess I was scared too at first , but as soon as I saw physical improvement of my face, I became alot braver.

 Now I think that our ancestors must have gotten alot more sun exposure than we do, as modern people we spend most of our day indoors, but THAT is actually kind of unnatural. I think sunlight is maybe sort of a natural medicine that boosts our immuneⁱ systems, I mean we evolved WITH the sun. I am not saying that you should bake on the beach all day, but alot of  people spend 365 days of the year indoors, give or take 2 weeks vaccation and a few weekends at the golf course, and thats gonna be significantly less vitD3 than what our ancestors got.

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rosaceaⁱi : to

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CAPⁱ for Cpnⁱ 11/04. Dxⁱ: 25yrs CFSⁱ & FMSⁱ. Currently: 250 aithromycin mwf, doxycycline 100mg BIDⁱ, Tiniⁱ 1000mg/day pulses; Vit D2000 units, T4 & T3, 12mg Iodoral

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6-07WheldonCAP CFS20+yr

(11-29-07 started Cholestyramine HS PRNⁱ x 7d for porphyrin+endotoxinsⁱ removal)

Check out Louise's Blog at; http://www.cpnhelp.org/blog/louise for the details of my treatment adventure!

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Treatment for Rosaceaⁱ

• CAPⁱ:  01/06-07/07
• High-Dose Vit D3, NACⁱ:  07/07-11/08
• Intermtnt CAP, HDose Vit D3:  11/08-01/09
• HDose Vit D3, Mg, Zn: 01/09-

Vit D, lab results from blood draw after a period of 3 months of D3 taken at 10,000IU/day, very minimal sun exposure at peak of winter, snow belt locality,  68ng/mL.  Louise

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6-07WheldonCAP CFS20+yr

(11-29-07 started Cholestyramine HS PRNⁱ x 7d for porphyrin+endotoxinsⁱ removal)

Check out Louise's Blog at; http://www.cpnhelp.org/blog/louise for the details of my treatment adventure!

I recently upped my dosage to 10,000 iu a day (from 8,000) after finding out I have a mutation in the VDR FOK (vitamin Dⁱ receptor). I have taken this much before but was noticing that the bumps in my mouth (tori)were growing. Then I backed off this amount. My doctor suggested dropping the calcium supplement I was taking and just get calcium from diet alone. This worked because this time I have no growth in the tori.

The days I go out in the sun, I drop the D completely if I get at least 30 minutes in shorts and a tank top between 11 and 1. Even in Jan. the Calif sun can be quite intense if we get nice weather.

My big question about D (for me) is how much does this VDR FOK mutation influence the absorbtion or utilization of D? I'm sure there are many other people who have mutations with their D receptors.

What has been the effect of high dose D? I have noticed significant die off from summer sun exposure earlier in the treatment. At three years plus, I get a slight effect from this new level. However, I think I just dodged a full blown shingles infection due to the high D plus all the other things I was taking. I was very lucky!!

Raven

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Feeling 95% well-going for 100. Still testing + for Cpnⁱ. CAPⁱ since 8-05 for Cpn/Mycoplasma P.for MSⁱ and/or CFSⁱ. Also EBVⁱ and HHV6. Amoxy,Doxyⁱ, Azith, Tiniⁱ pulses. NACⁱ, Iodoral, T3, BHRT, MethyB12 injections, Nitro patch,

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Treatment for Rosaceaⁱ

• CAPⁱ:  01/06-07/07
• High-Dose Vit D3, NACⁱ:  07/07-11/08
• Intermtnt CAP, HDose Vit D3:  11/08-01/09
• HDose Vit D3, Mg, Zn: 01/09-

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Doug

Hi Doug and welcome to our world!  Most of us - and most Americans  have or had - extremely low to low Vit D levels.  This certainly included me for years when I depleted my D level with liberal sunscreen, long-sleeved shirts, and wide-brimmed hats.  I developed MSⁱ and cancer.  Every day I take 10,000 (10,000) units of Vit D and most of the other supplementsⁱ suggested here.  My level is usually in the mid 80s, but recently had dropped to the mid 60s.  Up until last Monday my daily intake was 8,000.

Please read the Getting Started at the top of the page and anything else here - and ask questions if you don't find the answer.

Rica 

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3/9 Symptoms returning. Began 5 abxⁱ protocol 5/9 Rifampin 600, Amoxicillinⁱ 1000, Doxyⁱ 200, MWF Azith 250, flagylⁱ 1000. Caffeine pills with AM abxⁱ Began Sept 04 PPMSⁱ EDSSⁱ 6.7 Now good days EDSS 1

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi