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A big break - I get my PT back

Submitted by wiggy on Mon, 2008-04-14 11:54.
My daughter woke up yesterday and first thing out of her mouth is "Mom, you call old PT and do whatever you can do to get her back in your life, because you are not moving good". I said, I will call her - I called, she said I am not going to be able to get the type of script she needs but she will just come to my house and work with me once a week". She will give me a few things to work on. This is the best news I have had all month. She was making improvements in my gait. I am not feeling great - My liver enzymes up and my doctor had me take a break. Went off all abxi. She told me to stay on baclofen. I will have my blood draw Fri. and my appointment on 4/25. I am going camping with Brownie troop 5/3 and hope to be back on at least doxyi and zithi. I wasn't planning on going camping but leaders told me they did get handicap accessible cabin so I will go on that crazy trip for one night. I have ordered another liver detox to help me get through.

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On Wheldon protocol for MSii since April, 2006.  doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagylii Pulses start end Sept., LDNii 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma

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I almost forgot - I have

Submitted by wiggy on Mon, 2008-04-14 12:06.
I almost forgot - I have up'ed my NACi to 1500 mgs/day and tolerating. I also cut baclofen back 5 mgs - I was falling asleep in the middle of activities. Instead of taking baclofen at 11 pm - I take it at 3 am - hoping to get morning stiffness out of legs. As of this morning, I was able to get out of bed by myself for the first time in weeks. Legs hurt - ache so it wasn't easy but Mr. Wiggy cheered! On Wheldon protocol for MSi since April, 2006.  doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDNi 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30.

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On Wheldon protocol for MSi since April, 2006.  doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDNi 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma

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Wiggy,  That's wonderful

Submitted by cypriane on Mon, 2008-04-14 12:15.

Wiggy,  That's wonderful news!  Enjoy the camping trip.  I still have fond memories of Summer day camp when I was a Brownie.  You're helping to create future fond memories...Bless you.

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity. 

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Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity. 

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Wiggy I am glad you are

Submitted by loriyas on Mon, 2008-04-14 12:15.
Wiggy
I am glad you are tolerating the NACi.  That may help with the liver enzyme levels.  I hope for your sake that it does.  Plus being able to reduce the baclofen may help also.
Have fun on the camping trip!
Lori
 
Started Vanderbilt protocoli 1/9/08  Rifampin twice a day, azithromycin MWF, flagyli 7 days/month,  b12 injection monthly NAC daily, DHA, calcium pyruvate, prilosec

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Started Vanderbilt protocoli 1/9/08  Rifampin twice a day, azithromycin MWF, Tindamax for 7 days out of a month at 250 mg three times a day,  b12 injection monthly NACi daily, DHA, calcium pyruvate, prilosec, low dose naltrexone 4.5 mg

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Yes, Lori, I am ok with the

Submitted by wiggy on Mon, 2008-04-14 13:49.
Yes, Lori, I am ok with the NACi until I add in flagyli - than reactions, reactions.... On Wheldon protocol for MSi since April, 2006.  doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyl Pulses start end Sept., LDNi 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30.

___________________________________________________________
On Wheldon protocol for MSi since April, 2006.  doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDNi 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma

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Joyce, I hope it goes well

Submitted by wiggy on Mon, 2008-04-14 13:56.
Joyce, I hope it goes well - my sister-in-laws (have gone on this trip) told me there is no way I could go but I am going. I wonder which leader is going to have to pull me out of bed :). I hope that is over soon. She will not go on the trip w/o me and she won a trip as she sold enough cookies. I wouldn't have even thought about going before capi. My family will be shocked. On Wheldon protocol for MSi since April, 2006.  doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDN 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30.

___________________________________________________________
On Wheldon protocol for MSi since April, 2006.  doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDNi 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma

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Careful of ticks on your

Submitted by NellyP on Mon, 2008-04-14 15:29.
Careful of ticks on your camping escapade, you don't want Lyme on top of the rest! Nelly (France-neuroLyme and ????)

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Nelly (France-neuroLyme and ????)

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Nelly, I will be sure to

Submitted by wiggy on Mon, 2008-04-14 17:27.
Nelly, I will be sure to stay clear of the ticks. On Wheldon protocol for MSi since April, 2006.  doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDNi 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30.

___________________________________________________________
On Wheldon protocol for MSi since April, 2006.  doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDNi 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma

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& Mosquitos too, have fun

Submitted by ruthless1 on Wed, 2008-04-16 00:25.

& Mosquitos too,

have fun with your child!!

CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8

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CFIDSi/ME 32 yrs, FMSi, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, Full CAP 6-2-08, all supplementsi +Sea Kelp, Chitosan Pulse 16 1-4-09 1gm Flagyli/day-3 days

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Thanks Ruth - I will let

Submitted by wiggy on Wed, 2008-04-16 11:07.
Thanks Ruth - I will let you know how the trip goes! On Wheldon protocol for MSi since April, 2006.  doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDNi 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30.

___________________________________________________________
On Wheldon protocol for MSi since April, 2006.  doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDNi 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma

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