Blogs › Elise's blog

8 Year Old with Asthma, another update...

Submitted by Elise on Tue, 2011-04-19 12:56

Nathaniel's new CPni titre came in today.  In December 2010, when he commenced zithromycin, his titre was 1:256.  Today (April 2011) it was 1:128.

 

He is doing very well.  He sleeps well now - since the end of January, for the first time in years, he has not needed his ventolin inhaler during the night.  In the last month he has commenced allergy desensitizing and I've noticed that in the past 2 weeks he has been needing his ventolin a bit more.  I'm not concerned, I think this is an immunological reaction to the desensitizing.

 He is tolerating the full CAPi extremely well and aside from the intial, awful reaction he had in January, has really not been bothered by anything.

 

We are all very, very happy with the way things are progessing.

Comments

That is great news!  Thanks

Submitted by lleach on Sun, 2011-04-24 14:46.
That is great news!  Thanks for the update, Elise, and I hope to hear of continued progress.

Started CAPi for Cpni on 11/14/10 - Per my doctor, paused Abxi 5/18/13 - NACi, T3, St Johns Wort, B-complex, Vit C, Vit D3 (8,000/day), Vit E, Astragalus, Chlorella, Chelation with Alpha Lipoic Acid">i. Started Buhner protocal (2nd edition) on 8/30/16.

Excellent news,

Submitted by Red on Wed, 2011-04-20 20:54.
Excellent news, Elise!     I can't wait to hear even more good news in the future!

Treatment for Rosaceai<

  • CAPi:  01/06-07/07
  • High-Dose Vit D3, NACi:  07/07-11/08
  • Intermtnt CAP, HDose Vit D3:  11/08-01/09
  • HDose Vit D3, Mg, Zn: 01/09-

Magical but definitely not

Submitted by katman on Tue, 2011-04-19 16:06.

Magical but definitely not magic.  I am so happy for you, Nathaniel, and your family.  Again I can't help but think that in fifty years he would have had a harder time.  It appears that he has moved forward as much in a few months as I did in five years. 

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

You just brought a smile to

Submitted by MacKintosh on Tue, 2011-04-19 14:23.
You just brought a smile to an otherwise grey and gloomy Chicago day. It's great to know he's now going to have a normal life.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

User login

(If you're a human, don't change the following field)
Your first name.
CAPTCHA
This question is for testing whether you are a human visitor and to prevent automated spam submissions.
9 + 6 =
Solve this simple math problem and enter the result. E.g. for 1+3, enter 4.
To prevent automated spam submissions leave this field empty.

Navigation

Book navigation

Donations allow us to avoid advertising to keep the site clearly member and mission focused. and are used to pay for site maintenance. Any additional balance is held in trust for future needs or will be donated for research. We are not non-profit so it's not tax deductible. Donations and expenditures overseen by a committee of members.
Write your own amount to give
Amount $

Syndicate

Syndicate content