5th month on CAP - long overdue update.

I was going to post updates with my progress monthly but having being overwhelmed with trying to keep up with life and treatment, I am way  behind.

Anyway, here I go. I started back in Jan'08 with big doses of CAPi (3 abxi) and after extremely severe die-off reactions and stopping a couple of times, I re-started nice and slow in Feb'08, adding 1 abxi at the time, making small changes and ramping up.  

Finally on full doses of current protocol - Rifampin 600 mg/day and Doxyi 100 mg x 2/day - since mid-March. 

I take probiotic very diligently 35 bln pill/day and haven't had any problems with stool. Which probably means that probiotic is working well. I had a stomach/digestive tract pain & heartburn initially for 3.5 mns that has gone away in last few wks completely. It could've been die-off too.

Being hypothyroid, I had to increase Synthroid dose twice by 12 mcg and right now I am feeling OK thyroid-wise though I haven't done yet new blood work to check TSH and Ts levels. 

Improvements:

Fatigue/brain fog is gone by appr. 70%.

Muscle pain (have mainly in legs) gone by 60-70%.

Joint pain has improved much though hard to say by how much. Arthritis/tendonitis was my main complaint when I was starting CAP and still is. In the both legs I had pain in every big and medium joint, plantar fascitis and boats of tendonitis in legs, hands, shoulders, elbows bursitis. Now my left side is improved significantly, sometimes I don't feel any pain at all in left foot, hip and arm joints but my right side is still bothering me much, especially hip, foot & knee. Both hands have improved by 50%.

Ear blockage and shooting pain - gone 100% within 1st month on abx although my PCP originally diagnosed it due to ear wax. I never removed the wax.

Sinusitis improved by 40%. I still have a lot of post-nasal mucus especially in the morning but it's a clear type now, no yellow or gray in it. Sorry if TMI. If I press on the face in the areas of sinuses, on both sides of the nose, it's still painfull but slightly less.

Chronic mild cough is still there though improved by 30-40%. For all these months the improvement was very slow with cough. 

Pelvic pain is better by 70%.

Dermatitis on r.eye lid - gone 100%.

I have almost no improvement: 

Some weird pain that no drs could tell me what it is, it feel like a surface of the small bones is painful, mainly when I press on it or with movement. Also surrounding tissues and lymph nodes. Most of it I have in the breast bone and where ribs are getting attached to breast bone or at the end of ribs in the stomach area. On the ends of clavicular bones and lymph nodes there.  In legs I have it in muscles next to the sheen bone by my right ankle and top of the foot. In hands - top of the palms and base of the fingers. Same character pain I experience in both breast, could be lymph nodes inside? I did breast u/s recently and mammogramm a year ago and it was normal.

Not a change in my cystitis, in fact it got worse 1 month ago just a little. 

Hypertension">i< - no improvement.

I may have forgotten a symptom or 2, hopefully some symptoms are gone out of my life and my mind forever.

I sound very optimistic here but I know that I am not even close yet to being out of the woods. I just had an appt with my LLMD and he gave me a script fo Flagyli 500 mg 2/day for 5 days. I am going to try only 250 mg/day, is it right approach?

I haven't been taking supps consistently and feel bad about it. I do yoga and my dr insists it's time to start weight lifting. He said I won't get out of my health issues if I don't weight-lift and be more strict about antiinflammatory diet He gave me printouts from the Lyme Solution book what foods to eat.

Thanks for reading and hope it helps to all newcomers in the future.

Nata.

Arthritis/tendonitis. Lyme disease (diagnosed by Western blot). Cpni +. Hypertension. HypoT Hashi's. Recurrent miscarriages. Started Jan-Feb'08 with Minoi/Rif/Azith.

Feb-Mar'08 Azith.

Rif 600 mg/day since Feb'08 + Doxy 100 mg x 2/day since March'08. 

Comments

cpni and Lyme can really

cpni and Lyme can really wreck havoc on the urinary system. its seems like that might be the last one to go for me. that and the arthritis. God bless! and keep it up

Fibro, CFSi,  Myco, CPNi, Stratton protocol, Zithro 500mg M/W/F/S, Doxyi 100mg 2x day, NACi 1200mg 2x day, Flagyli and INHi 2 week pulses 400 mg 3x day, Rifampin, 300mg 2x day,  Still cant shake it but improving.

Thanks, Lee. Every month I

Thanks, Lee. Every month I seem to experience some new aggravations in one organ system or another. Like if inflammationi or perhaps die-off damage moves from one affected part of my body to another. This past month it's a urinary stuff. It feels like an overactive bladder - "got to go" all the time and a bit of pain. However, I haven't lost hope that it's a temporary crisis before it gets better. Crossing the fingers. 

Nata.

Arthritis/tendonitis. Lyme disease (diagnosed by Western blot). Cpni<i< +. Hypertension">i. HypoT Hashi's. Recurrent miscarriages. Started Jan-Feb'08 with Minoi<i</Rif/Azith.

Feb-Mar'08 Azith.

Rif 600 mg/day since Feb'08 + Doxyi 100 mg x 2/day since March'08. 

Nata.

CAP Jan'08 to Dec'09 for arthritis. Doxyi, Rif, Azith, Bactrim, Minoi, Clarith, Flagyli, Amoxicillini. Re-started Dec.'10 for residual joint pain and painful heartbeat.Now: Mino 200 mg/day, Clarith  1000 mg/day, Flagyl 1000 mg/

Nata, these improvements in

Nata,

these improvements in just a short time are absolutely phenominal!  I am so glad you backed off & started a more sensible pacing for protocol.  You report has come along in a timely manner.

If you can you should have the support supplementsi handy along with the toxin moppers for when you start pulsing.  My first pulse of 1 pill, one day 250 mg gave me die off symptoms!

Keep up the good work.

CFIDSi/ME 26yrs, FMSi, IBSi<, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#10 1000 mg 3 days & 750mg 2 days, 5-17-8

CFIDSi/ME, FMSi, MCS, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsi+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyli/day-5 days<

Thanks for encouragement,

Thanks for encouragement, ruthless. Now that I am feeling better, I am so not looking forward to new boats of die off with Flagyli but I know that I need to push myself thru this.

Nata.

Arthritis/tendonitis. Lyme disease (diagnosed by Western blot). Cpni<i< +. Hypertension">i. HypoT Hashi's. Recurrent miscarriages. Started Jan-Feb'08 with Minoi<i</Rif/Azith.

Feb-Mar'08 Azith.

Rif 600 mg/day since Feb'08 + Doxyi 100 mg x 2/day since March'08. 

Nata.

CAP Jan'08 to Dec'09 for arthritis. Doxyi, Rif, Azith, Bactrim, Minoi, Clarith, Flagyli, Amoxicillini. Re-started Dec.'10 for residual joint pain and painful heartbeat.Now: Mino 200 mg/day, Clarith  1000 mg/day, Flagyl 1000 mg/

"Hypertensionii - no

"Hypertensioni< - no improvement."

Azithromycin actually caused my hypertension. I didn't have high bp before I started the azi and the high bp started literally overnight with it. So even if you had high bp before you started the abxi maybe the abxi are keeping it up and you won't see improvement there until you're done and get off of all of them.

Asthmai, chronic sinusitis/rhinitis, chronic tendonitis, hypothyroid. Jan 9, '08 - started azithromycin 1000mg/week. Mar 13, '08 - increased azi to 250mg/day, added 20mg Benicar daily.

I think you are right,

I think you are right, Sunni.

My hypertension">i got aggravated with CAPi at first and was really eratic at times for 1st few mns. But in the last month I've noticed that my BP is better and back to my pre-CAP levels except for the times when I feel die-off reactions which I still have every 2-3 wks. Hopefully your BP will go back to normal too.

Nata.

Arthritis/tendonitis. Lyme disease (diagnosed by Western blot). Cpni<i< +. Hypertension. HypoT Hashi's. Recurrent miscarriages. Started Jan-Feb'08 with Minoi<i</Rif/Azith.

Feb-Mar'08 Azith.

Rif 600 mg/day since Feb'08 + Doxyi 100 mg x 2/day since March'08. 

Nata.

CAP Jan'08 to Dec'09 for arthritis. Doxyi, Rif, Azith, Bactrim, Minoi, Clarith, Flagyli, Amoxicillini. Re-started Dec.'10 for residual joint pain and painful heartbeat.Now: Mino 200 mg/day, Clarith  1000 mg/day, Flagyl 1000 mg/

 Absolutely! Like starting

 Absolutely! Like starting all the other things, it's good to start gradual until you have an idea about how it will affect you. So first pulse of 250mg a day is a good test.

CAPi for Cpni 11/04. Dxi: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 300mg Roxithromycin, Tinii 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3

 

CAPi for Cpni 11/04. Dxi: 25+yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, restarted Tinii pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Thanks,

Thanks, Jim.

Nata.

Arthritis/tendonitis. Lyme disease (diagnosed by Western blot). Cpni<i< +. Hypertension">i. HypoT Hashi's. Recurrent miscarriages. Started Jan-Feb'08 with Minoi<i</Rif/Azith.

Feb-Mar'08 Azith.

Rif 600 mg/day since Feb'08 + Doxyi 100 mg x 2/day since March'08. 

Nata.

CAP Jan'08 to Dec'09 for arthritis. Doxyi, Rif, Azith, Bactrim, Minoi, Clarith, Flagyli, Amoxicillini. Re-started Dec.'10 for residual joint pain and painful heartbeat.Now: Mino 200 mg/day, Clarith  1000 mg/day, Flagyl 1000 mg/

I hope someone knowledgable

I hope someone knowledgable about dosing can answer this for you. (Is starting Flagyl at 250mg a day enough?) I'm glad you are already seeing some improvement. Combined Antibiotic Protocol minocycline, azithromycin, metronidazolei for muscle pain, insomnia, interstitial cystitisi, sinus, disphonia, dry eyes, stiff neck, veins, thyroid, TMJ.

minocycline, azithromycine, metronidazolei 2007-2009, chelation for lead poisoning, muscle pain, insomnia, interstitial cystitisi (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (no longer hurt)

Thank you,

Thank you, Janice. 

Nata.

Arthritis/tendonitis. Lyme disease (diagnosed by Western blot). Cpni<i< +. Hypertension">i. HypoT Hashi's. Recurrent miscarriages. Started Jan-Feb'08 with Minoi<i</Rif/Azith.

Feb-Mar'08 Azith.

Rif 600 mg/day since Feb'08 + Doxyi 100 mg x 2/day since March'08. 

Nata.

CAP Jan'08 to Dec'09 for arthritis. Doxyi, Rif, Azith, Bactrim, Minoi, Clarith, Flagyli, Amoxicillini. Re-started Dec.'10 for residual joint pain and painful heartbeat.Now: Mino 200 mg/day, Clarith  1000 mg/day, Flagyl 1000 mg/