2nd Pulse

I have just completed (yesterday, Tuesday) my 2nd Flagyli pulse, this time for 2 days (first one for one day). Hasn't been particularly bad, generally I felt (and feel) a little unwell and fatigued, but not too bad.

Overall I have experienced some big improvements since starting CAPi. I can work all day without needing naps and my movement has improved. I played tennis on Saturday and Sunday. On the Saturday I was feeling great and playing the best tennis in ages and 2 people told me how well I was playing. On Sunday I wasn't feeling so good, my leg felt stiff and my play was not very good. So I feel that my progress is very much upward, with some amazing days scattered around.

Comments

well then Malcolm...here's

well then Malcolm...here's to the internet full of bad advice & hucksters!!!

Wink

CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonin">i, GABA, tarazadone, temazepam, novocyclopine, allergy formula, 2 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 9-30-07 2nd pulse 1 X 250 mg Metroi<

CFIDSi/ME, FMSi, MCS, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsi+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyli/day-5 days<

congrats on getting pulse #2

congrats on getting pulse #2 out of the way. 

As Daisy mentioned, your illness treatment may well show how effective it is with an early start.  I hope others will help pave the way.

Blessings

CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonin">i, GABA, tarazadone, temazepam, novocyclopine, allergy formula, 2 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 9-30-07 2nd pulse 1 X 250 mg Metroi<

CFIDSi/ME, FMSi, MCS, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsi+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyli/day-5 days<

Thank you Daisy and Ruth,

Thank you Daisy and Ruth, yes I think you are both right I am fortunate to start early, the idea of losing my physicality was quite shocking to me so I was propelled into research. Also I think coming from a family of doctors (Mum, Dad, Grandad, Sister) I have a healthy inbuilt scepticism for medical advice!

Having said that I do think I have been in gradual decline for some time without realising it, having faced the prospect of a future of diminishing ability I now feel that I might end up feeling better and more able that I have in many years.

I make my living on the Internet, so I am a big fan anyway, but what an incredible resource it is, because without it I would have only had the advice of the doctors I have come into contact with about MSi and following their advice would be disastrous I think. The first doctor told me not to look up MS on the Internet because it was full of bad advice and hucksters!

Malcolm

Doxyi 200mg since 13 Sep 07 (100mg since 26 July 07), Naci 1200mg since 27 July 07 (600mg NAC since 9 July 07), Azi 250mg 3xweek since 31 Aug 07, Flagy pulses started 3 Oct 07, diagnosed MS Aug 06.

Malcolm

Wheldon Protocol since July 07. Doxyi 200mg July 07, Naci 1200mg July 07, Azi 250mg 3xweek Aug 07, Flagyli pulses Oct 07, diagnosed MSi Aug 06. Intermittent Aug 08.

Malcolm - Amazing days

Malcolm - Amazing days scattered around!  That's wonderful.  It really seems your starting CAPi so early in your diagnosis is going to possibly make a huge differance in your long term prognosis! 

Way to Go!

Daisy-Caregiver- Balo's Concentric Sclerosis. Began CAP 5/10/07. Doxyi 200 mg, Minoi 100 BIDi 9/1/07, AZI 250mg QDi 9/10/07, Rifampin 300mg QD, NACi 1800 mg, HD Flagyli Pulses, Novantrone, Prednisone & daily lb of supplementsi.

Daisy - Husband on CAPi 5/07.  Husband died from Acute Myelogenous Leukemia Secondary to the Infusion of Novantrone.  Ie - the treatment with the conventional MSi drugs killed him.

Daisy on her own CAP 11/2012. 

Malcolm - Amazing days

Malcolm - Amazing days scattered around!  That's wonderful.  It really seems your starting CAPi so early in your diagnosis is going to possibly make a huge differance in your long term prognosis! 

Way to Go!

Daisy-Caregiver- Balo's Concentric Sclerosis. Began CAP 5/10/07. Doxyi 200 mg, Minoi 100 BIDi 9/1/07, AZI 250mg QDi 9/10/07, Rifampin 300mg QD, NACi 1800 mg, HD Flagyli Pulses, Novantrone, Prednisone & daily lb of supplementsi.

Daisy - Husband on CAPi 5/07.  Husband died from Acute Myelogenous Leukemia Secondary to the Infusion of Novantrone.  Ie - the treatment with the conventional MSi drugs killed him.

Daisy on her own CAP 11/2012.