Cpnhelp.org - Chlamydia Pneumoniae Treatment

Hi Zdenicka,

Thank you for the uplifting post. I too am feeling great! I am only about 3 months in (one flagl pulse), but I have had a big change in my condition. I played over 2 hours of tennis yesterday at a high standard, it was only in April that I quit playing tennis as my balance and coordination had deteriorated so much (one oponent thought I was drunk!). Also I tried to play a game in August and I felt like a piece of jelly, no strength in my body, the feeling that I was about to collapse, that was a very low point for me.

I am looking forward to playing again today!

Malcolm

Doxyi 200mg since 13 Sep 07 (100mg since 26 July 07), Naci 1200mg since 27 July 07 (600mg NAC since 9 July 07), Azi 250mg 3xweek since 31 Aug 07, Flagy pulses started 3 Oct 07, diagnosed MSi Aug 06.

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Malcolm

Wheldon Protocol since July 07. Doxyi 200mg since 13 Sep 07 (100mg since 26 July 07), Naci 1200mg since 27 July 07 (600mg NAC since 9 July 07), Azi 250mg 3xweek since 31 Aug 07, Flagy pulses started 3 Oct 07, diagnosed MSi Aug 06.

 Zdenicka, that is really good to hear! I really need to hear things like this beause I have recently started the CAP and don't feel well at all. 

Is that right you had chronic fatigue syndrom? Your father "Coufal" has that and he is also on CAP and getting better is that right? Are you still on antibioticsi or only NACi? 

 

"Odhilda"  CFS diagnosed in 1999, not able to work or study since 1993. Mekobalamin (B12) injections 10mg x12/month.  Levothyroxine(T4) NAC 1000 mg. Doxycyklin 100mg. Sweden is my home and Swedish my first language. .

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"Odhilda" CFS, not able to work or study since 1993. Mekobalamin (B12) injections 10mg x12/month. Levothyroxine(T4). NACi 500-850. Started Doxyi Sept-07. Started Roxi Nov-07 first Metroi-pulse March-08. Swedish is my first language.

that is wonderful-congratulations.

Mphs, TN. hypothyroid, weak adrenals, 37 yo with hormones of 80 yo, fatigue. 6/26/07- CPNi Titer 1:256 (normal 1:16); 6/27/07- NACi; 7/2/07- doxyi 100, 2xday; 7/19/07-9/7/07- Biaxin. 9/8/07-azith 250 mg m/w/f.

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Mphs, TN. CFSi, hypoT (Hashi), adrenal fatigue, 37 w/hormones of 80,. right arm neuropathy. + cpni, myco, EBVi, CMV. NACi 4000mg, doxyi 100-2xday, azith 250 m/w/f/sun, progesterone, estriol, synthroid, pulse flagyli, tinii<

Excellent news!!!!!!!!!!!!! On Wheldon protocol for MSi since April, 2006.  doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDNi 2004

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On Wheldon protocol for MSi since April, 2006.  doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDNi 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma

Zdenicka that is nice to hear it ... but be carefull ...this treatment is relly inscrutable .... I had first half of a year (maybe more) times of even worse feelings than before treatment .... just to know that it can happen .... do not panic than :)

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Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

Zdenicka yeas, U R right. I am still on ATBs, but I will stop taking them in .... I think 2 weeks or 1 month. Than I will continue for one year in 3 months phase .... Hope it is enough ...

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Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

Zdenicka Thanks .... goog luck to you as well :)

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Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

Many times I have thought of you and here you are - and much, much better. Congratulations to you! It is wonderful to hear. Please make a comment at least occasionally to keep us informed on your continued progress.

 

Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 46 pulses NC USA

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Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 52 pulses LDNi Rifampin 8/08 again NC USA

Zdenicka I will do, I do promise ... but it takes time a bit ... I am busy with my school and work ... but I have already wrote something in my native language (7 pages) ... so I will translate it and put it here. Hope all of you will feel better soon as I do ...

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Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

Congratulations! It's nice to hear success stories and I'm glad you're one of them! On CAPi since June 2006 for high blood pressurei, nasal allergies, restless legs, memory and cognitive problems. Currently: Doxyi 200 mg/day; Azith 250 mg 3X/wk; Flagyli pulses every three weeks 400 mg 3X/day for 5 days

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On CAPi since June 2006 for high blood pressurei, nasal allergies, restless legs, memory and cognitive problems. Currently: Doxyi 200 mg/day; Azith 250 mg 3X/wk; Flagyli pulses every three weeks 400 mg 3X/day for 5 days

Thanks so much for keeping in touch Z...

I have faith the protocol works but it takes a while to get at all the areas the critters can be in.  Patience & time are needed to see it through.

When one thinks about how ill we are & then think about how ill we could be.  This bacteria can kill us in its nature to infect any organ!  I am certain the path I was heading down was to be completely bed ridden for a very long time, watching life in my may day tree outside the window in my room while my body died around me.

Good Job & best wishes for your intermittent schedule of treatment into the future!

Blessings

CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, temazepam, novocyclopine, allergy formula, 2 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 9-30-07 2nd pulse 1 X 250 mg Metroi

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CFIDSi/ME 32 yrs, FMSi, IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#13 1240 mg X 3 days 8-7-08

Zdenicka Thanks a lot. Hope everyone here would have the same luck as I had.

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Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

Zdenicka I do really understand what do you mean :( ... I had the same feelings and ... I am also pretty sure I would really die without Wheldon protocol .... my heart was working really too bad.... WP "came to me" just in time ....I am afraid, that a few months later would be crucial. I will write more about that in the future, but please, give me a time (no time because of my school, work, etc. ... no time .... pffff). But the most important I have already written .... I am alive, all the troubles disapeared and I feel so good as never before .... really.

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Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

Yes, Zdenicka, so wonderful that you "feel so good as never before....really."   Thank you for sharing that is so inspirational to those of us who are following you.  Please do get back as able and write more specifics for us and those who will follow us.  More success stories are always needed!

Thank you, Louise 

 Louise, USA, Northern New England. CPni, Bb(Borrelia B., Lyme,) CFS.     Started CAPi 6/24/07 Doxy400, NAC1200.  Currently 9/24/07, Doxy 200 mg, NAC 2400 mg. 

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Louise-CFSi, CPN+/Bb+ Wheldon CAPi 6/07, Cholestyramine1-2pksHSforPorphoria& Endotoxinsi, Doxy100daily,Roxi300BID,Tini500mgBIDpulses,VitD3-4000IU,MagnascentIodine,{S.O.D.3/QD[KAL Brand],+Pyruvate3.75G+SAM-eForEnergy}

Zdenicka We (in fact my father Coufal and Lala) had already made "Czech webside" http://chlamydie.info/ about chlamydophyla pneumoniae treatment according to the Wheldon's protocol, something like "daughterly" webside of cpnhelp.org (hope there is this idiom in English ....) so it takes me much time and connected with school and job obligations, there is no more time, only to sleep a little :) But I will try to put it here into 2 weeks. I will do my best. I wish to all of you to have so big success with the treatment as I had .... really. I did not believe in it the first moments .... I thought my father went mad when he came with "months or years of antibioticsi tratment" .... to "try it" .... but he is my father and I always trust him since my childhood and there was no other possibility to "try" something else ... according to all doctors, I was a patient for psychiatrist .... so ... I am so much grateful to my father and Jim and Sarah ... I began to be aware of it only a few days ago ... before I tried not to think about all things in the past, to forget about all the troubles before .... but one week ago, I followed up some people (users of the Czech webside) to write my story there ..... and I was thinking, commemorating deeply .... and I was really crying. I can not express my feelings .... for example ... I was standing in a bus today, thinking and watching other people, throught the window and almost started to cry ... 2 years ago, I would faint only even of a few minutes of standing ..... So I would like here again TO THANK A LOT JIM, SARAH AND MY FATHER FOR SAVE MY LIFE!!!!

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Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

And now I am 'really crying'. You are the reason many of us risk ridicule to spread the word. It is SO easy to save a life; you just have to try. And look at the result!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Zdenicka,

First, let me say your translations of Czech to English are very good.  Keep it up and you'll be writing better English than some of the people here in Dallas for whom English is supposed to be a first language.

Second, so many neurologists in the United States have tied their careers to the idea that M.S. is an autoimmune disease that the proof it is not may have to come from some place like the Czech Republic where doctors place healing people above the money they get from practicing medicine.

Third, if you ever come visit the Dallas-Fort Worth area, make sure to check out the National Cowgirl Museum (http://www.cowgirl.net/)  I think that it would interest someone who is obviously as determined as you are. 

Fourth, as the kids here would say, "You go, girl!"  Being an old man, I feel strange typing that.  Hopefully it translates well.  If not, it means keep on doing what you are doing. 

CAPi for M.S. since 8/2007. Currently: 200 mg Dox. Waiting to start Zithi & Flagyli.

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CAPi for M.S. since 8/2007. Currently: 100 mg Dox. (2 x day), 250 mg Zithi (3 x week) ceased 3/2008, restarted 5/2008, 150 mg Roxi (2 x day) starting 3/2008, ended 5/2008. Twelfth pulse metronidazolei & INHi completed 8/28/2008.

Zdenicka I think I understand what you wanted to say and thank you a lot. I did not believe in it and I also did not want to write something about my privacy (as I did on our Czech webside and what I will translate into English here soon) ... but I really feel something like I "owe it" to everybody here .... I am so angry of all the doctors and scientists, who allege that this is an absolutely foolish thing we have decided for and that this is not treatment and that we are hypochondriac and need mental treatment ..... even I do not believe in God, I always say ...."God's mills grind slowly but surely" .... that is a typical Czech idiom, hope you understand what I wanted to say ....

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Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

I understand how very busy you must be.  One little question -- did you have chronic fatigue and/or fibromyalgiai and/or multiple sclerosisi, etc.  Would just like to know exactly what you had as it's not clear to me.

Congratulations and thanks!

denise 

 

63 year old woman feels like 80!  CFSi since 1998.  Severe fatigue.  Tested positive for CPN 3/07.  Severe reaction to azithro (begun slowly in 5/07) - stopped.  Working with nutrition, vitaminsi before starting more abxi.

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63 year old woman feels like 80!  CFSi since 1998.  Severe fatigue and awful reverse sleep main symptoms.  No Fibro.  Tested positive for CPN 3/07.  Severe reaction to azithro (begun slowly in 5/07) - stopped. 

Zdenicka My diagnosis was chronic fatigue syndromei, infectionsi and later chronic glandular fever (kissing disease) and Epstein-Barr virus (EBVi). A few years later I made a small cheat on my doctor and ticked off cHSP60 in laboratory application form. It was extremely high – plus 4,8. But nevertheless, according to my immuno specialist, I was absolutely healthy and this was „just some discrepancy“,because the values of IgA, IgGi and IgM were boundary .... so „that ment that I was healthy“. So according to the doctors, I needed mental treatment .... I am sure I had beginnings of disseminated sclerosis .... and more and more other problems.

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Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

I only can add the reference point of test for cHSP, it was 0.9. Thus 4,8 was positive value. Jan CR /Prague; On CAPs:12/01/2005; 20 years CFSi, then fibromyalgiai; about 10 years chronic sinusitis, laryngotracheitis, from 2002 hoarseness; from 2003 - v.s. lumbosacral meningoradiculitis, hypertensioni. September 07 - still improving

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Jan CR /Prague; On CAPs:12/01/2005; 20 years CFSi,IBSi, fibromyalgiai; about 10 years chronic sinusitis, laryngotracheitis, from 2002 hoarseness; from 2003 - v.s. lumbosacral meningoradiculitis, hypertensioni. August 08 - still improving

Thank you so much for letting me know what your diagnosis was.  I too have chronic fatigue.  I had terrible reactions to azithromycin even when I introduced it one per week.  I had such stabbing abdominal pains and such endless diarrhea that I had to stop. 

I'm so happy you were able to see the antibiotics through and are doing so well.

denise

 

63 year old woman feels like 80!  CFSi since 1998.  Severe fatigue.  Tested positive for CPN 3/07.  Severe reaction to azithro (begun slowly in 5/07) - stopped.  Working with nutrition, vitaminsi before starting more abxi.

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63 year old woman feels like 80!  CFSi since 1998.  Severe fatigue and awful reverse sleep main symptoms.  No Fibro.  Tested positive for CPN 3/07.  Severe reaction to azithro (begun slowly in 5/07) - stopped. 

Zdenicka congratulations on making it through the bad times and coming so far, you will enjoy this hard-won reward.

We have had similar experiences with this treatment, I started the Wheldon protocol in August 2005 and also thought I was dying for the first few months.  After 6 months so many things had gone wrong, I was very weak, in pain, had seizures, psychological problems and was at about the lowest point ever in this illness,  my doctor and I thought it wasn't working so he made me stop.   Even during the break the problems continued but I came back to the CAPi mainly because of the people on this site who told of success and the research backing up their stories.

In September 06 I re-started CAP and at the beginning everything got worse again but gradually it started to turn around and now, after 19 months in total  my life is also coming back ...... I will echo your saying that  'the mills grind slowly but surely' ...the CAP is not a quick fix but it's a sure one.

Here's to our future progress onwards and upwards.

Namaste.

Elinor ..... from England  on CAP, doxyi/roxi/tini  for ME/CFSi/lyme borreliosis, positive Cpni and borrelia. Started Aug05, stopped Jan06, started again Sept 06.

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Elinor ..... from England  on CAPi, doxyi/roxi/tini  for ME/CFSi/lyme borreliosis, positive Cpni and borrelia. Started Aug05, stopped Jan06, started again Sept 06.

Denise,

try using probiotics, Lactobacilus acidophilus, Bifidobacterium bifidum and so on. See for instance here . But you must not swallow these probiotics within the same time of using Azithromycin. For example use probiotics in the morning and azithromycin in the evening. And it is useful something to eat two hours before using azithromycin. Pains schould vanish in time.

And you had to follow this "...Once antibioticsi are ready to be started, I would start with a macrolide. .... I would still give just one 250 mg azithromycin tablet and then wait two weeks to see if there is any reaction to it. Then I would give two tablets, one on Monday and one on Wednesday. Once again I would wait two weeks...." see Stratton/Vanderbilt Protocol Update: February 2006

 

Jan CR /Prague; On CAPs:12/01/2005; 20 years CFSi, then fibromyalgiai; about 10 years chronic sinusitis, laryngotracheitis, from 2002 hoarseness; from 2003 - v.s. lumbosacral meningoradiculitis, hypertensioni. September 07 - still improving

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Jan CR /Prague; On CAPs:12/01/2005; 20 years CFSi,IBSi, fibromyalgiai; about 10 years chronic sinusitis, laryngotracheitis, from 2002 hoarseness; from 2003 - v.s. lumbosacral meningoradiculitis, hypertensioni. August 08 - still improving

Zdenicka

Great to hear your news and a lesson to us all to be patient and courageous in the presence of the fear of dying.

We have little to loose by following this protocol especially as no other effective treatment is available but it takes a lot of determination to stand up to the medical profession.

Michele (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Yes .... I can only agree with you. The first few months were really like from horor .... All of my troubles become worse and worse and my psychic ..... I was really "down". I had to start with dosing antidepression medicaments .... Prague, The Czech Republic, on WP from December, 2005. Diagnosis before the treatment: chronic fatigue syndromeii from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

Yes .... this treatment needs really a lot of patience ... But there is no other way ... Good luck and be strong. Everything will be better and better

 

 

Prague, The Czech Republic, on WP from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever (kissing disease) and Epstein-Barr virus (EBVi), cHSP60 was 4,8.

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Prague, The Czech Republic, on CAPi from December, 2005. Diagnosis before the treatment: chronic fatigue syndromei, chronic glandular fever and Epstein-Barr virus (EBVi), cHSP60 (chlamydia heat schock proteini) + 4,8.

Jan,

Thanks for your advice re taking a probiotic.  I really appreciate it and will check out the link you included.

I'll be (finally) seeing my cfsi MD next week and we will discuss my recent blood tests, antibiotics, etc.  It's just very scary for me as I live alone -- however, I'm sure there are people here who also live alone.  Just need to get things in order and start the protocol. 

I've printed out the various protocolsi, but my brain does not always want to do any work!  I'm glad you and your daughter are doing so well.  It is so encouraging for me.

 

63 year old woman feels like 80!  CFS since 1998.  Severe fatigue.  Tested positive for CPN 3/07.  Severe reaction to azithro (begun slowly in 5/07) - stopped.  Working with nutrition, vitaminsi before starting more abxi.

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63 year old woman feels like 80!  CFSi since 1998.  Severe fatigue and awful reverse sleep main symptoms.  No Fibro.  Tested positive for CPN 3/07.  Severe reaction to azithro (begun slowly in 5/07) - stopped.