1st week of abx

Saturday has now devolved into the day I take stock of my progress and make any changes. I've now reached the full dosage for the abxi and increased to 1800mg for NACi. I have no major effects to report, is that good - is it bad - toss for it. However I seem to be trying to work my way through the entire gamut of minor unpleasant effects - tingling feet and hands, restless left leg, muscle pain, small rash on chest, some facial flushing, upset stomach and high pitched ringing in my ears - par for the course. If it wasn't for this site, I'd have myself put down.

On the plus side, my writing and typing are getting slightly better, off and on. My balance remains better but is not improving any but it is really early days after all. A strange effect is that a bad scalp condition I've had since I was young (large amounts of white flakes) seems to be improving.

My fatigue level remains the same and I was reminded of that quite strongly. I spent 2½ hrs mixing cement (yes - I know!) on Wednesday as my brother and I are renovating a house. I was told about my mistake by a sharp slap on the back of my head and I've spent the rest of the week recovering.

Comments

Good start Robert, I sure

Good start Robert, I sure hope things continue smoothly for you.

Daisy, thanks for the information on pityrosporum, one of the last symptoms I had before starting the ABXi, was a flaking scalp.   It had never occured before and led to more denuding, and until I started the protocol three months later there was no hair regrowth, just more flakes than hair.  All gone now...

Michele (UK) GFAi: Wheldon CAP1st May 2006 . Daily Doxyi, Azi MWF, Flagyli at 400mg for 7 days prior to 5 day pulses at 1200mg three weeks cycle. Spokesperson for Ella, RRMSi Wheldon CAP 16th March 2006

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

Thanks for the kind welcome

Thanks for the kind welcome folks. I've joined a rather exclusive but welcoming and supportive club where nobody in reality wants to be. These past weeks have seemed like climbing the first pitch and now I've reached the first plateau and hopefully I can now just get on with it.

  Thanks for the info Daisy, I've tried everything for years, but not Grapefruit seed extract. I'll give it a go.

Robert - MSi for 16yrs. CAPi since Jul 07, NACi 1800mg, Doxyi 200mg daily, Azith 250 mg MWF.

MSi for 20yrs. CAPi since Jul 07, NACi 2400mg, Doxyi 200mg daily, Azith 250 mg MWF, Flagyli for 4yrs.

Robert,  Terrific news! 

Robert,  Terrific news!  "No major effects," only small nuisance effects plus improvement make you a model.  When and if you hit a rough patch, this post will be a good thing to bolster your resolve.  Best wishes on your journey.

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAPi since August 06, antivirals, heavy metals chelation, LDNi, Metanx, Lunesta, GF/CF diet, Lauricidin, oral IgGi/lactoferrin/IGF-1 booster, astaxanthin, gamma oryzanol.

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity. 

 Robert- You are in a fine

 Robert- You are in a fine tradition here, at least among some of us, of "anything worth doing is worth overdoing!" I am one of the charter members of that club, and I welcome you to our ranks!

CAPi for Chlamydia pneumonia since 11/04. 25yrs CFSi & FMSi- Currently: 300mg INHi, 200 Doxycycline, 500mg MWF Azithromycin, 1000mg Tinii daily (Taking a break from continuous protocol)

 

CAPi for Cpni 11/04. Dxi: 25+yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, restarted Tinii pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Robert - Congratulations and

Robert - Congratulations and may your treatment always go easily and with good results!  You are off to a strong start!

The flaking scalp referred to in this post is usually caused by a fungal/yeast  infection - pityrosporum .  Now before you or others possibly freak out - almost everyone whether they are flaking or not has pityrosporum living on the skin of the scalp.  The problem becomes when the yeast overgrows and this is what may lead to the scalp flaking (dandruff) or flaking of other areas of skin (eyebrows/beard/etc...).  

 When the skin is inflammed (pink/raised, etc...) plus flaking then you have a fancier name - seborrhoeic dermatitis - it's all still usually excess yeast though.  

 An underperforming immunei system such as one paralyzed by cell wall deficient stealth pathogens can allow the yeast to overgrow. 

As your immune system re regulates then the yeast is brought back under control - usually quiet naturally and the flaking then stops.  There are other things that can also cause the yeast to overgrow but the bottom line - it's a yeast.  A fungus among us, if you will pardon the pun.   This could also be true for "jock itch" and "athletes foot" also caused by a yeast/fungus. 

So if yours is already resolving, your immune system may be improving as a possible theory! 

A very inexpensive and usually quiet effect solution for skin yeast is Grapefruit Seed Extract applied in a diluted solution.  I like to put about 15 to 20 drops in two ounces (60ml) of bottled water.  Shake up and then apply liberally to scalp or skin until problem disappears.  Usually there is massive improvement within 24 to 48 hours.  If the Grapefruit Seed Extract solution doesn't resolve the problem within a week or if the problem becomes worse - of course stop and go see a dermatologist.  If the skin is broken/open sores or is painful of course go see the dermatologist first but if you just have classic dandruff/scalp flaking - you might try the inexpensive Grapefruit Seed Extract solution. 

Daisy-Caregiver- Balo's Concentric Sclerosis. Began CAPi 5/10/07. Doxyi 200 mg, Minoi 100 BIDi 9/1/07, AZI 250mg MWF, NACi 600 to 1200 mg, Flagyl Pulses, Novantrone, Prednisone and daily pound of supplementsi.

Daisy - Husband on CAPi 5/07.  Husband died from Acute Myelogenous Leukemia Secondary to the Infusion of Novantrone.  Ie - the treatment with the conventional MSi drugs killed him.

Daisy on her own CAP 11/2012. 

Thanks for the info Daisy,

Thanks for the info Daisy, yeast, nasty yeast on my head.  Nice!!!!

It is improving but I am going to take more Pau d'arco to get the beast under control!!!  the grapefruit seed solution is greatly appreciated, has to be better than Valisone that is highly alcohol based!

Grace & Peace

Ruth

CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonin">i, GABA, tarazadone, temazepam, novocyclopine, allergy formula, 2 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 8-21-07 1st pulse 1 X 250 mg Metroi<

CFIDSi/ME, FMSi, MCS, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsi+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyli/day-5 days<

Robert, Great job - I

Robert, Great job - I havn't got up to 1800 of NACi yet :) On Wheldon protocol for MSi since April, 2006.  doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDNi 2004

5oo mgs Ceftin 2 x/day, 500 mgs Zithromax, 500 mgs 2 x tinii pulses,100 mg diflucan, 4.5 ldni; Wheldon protocol for MSi April, 2006 to May 2008. 2008 MRI shows NO NEW DISEASE ACTIVITY, 2012 MRI no new disease activity.

Um, they shoot horses,

Um, they shoot horses, don't they? I'm restoring a house, too, and yesterday was caught helping to carry sacks of lime mix for plastering. The contractor chastised me and he doesn't even know how sick I was! I know it's a fine line between quitting before you're actually wiped out and being called a wimp, but you'll learn your limits as you progress on the protocol. So far, it sounds like you may have joined the ranks of those of us who caught it so early, we experience little backlash. That's the best thing you can wish for!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Rob, you are doing great for

Rob, you are doing great for the stage you are at!

I have that scalp flakiness & buried under the flakes are little sores, however; mine has not disappeared as of yet.  Here's hoping.

We have something in common, doing too much & having trouble pacing yourself.  Smarten up!!! lol Tongue out

Blessings

Ruth

CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonin">i, GABA, tarazadone, temazepam, novocyclopine, allergy formula, 2 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 8-21-07 1st pulse 1 X 250 mg Metroi<

CFIDSi/ME, FMSi, MCS, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsi+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyli/day-5 days<

Robert, what you have here

Robert, what you have here is much better than being slammed. Each one of these separately might bother you like a fly, but together they are just a good sign. (I could say something like - just wait, your time will come). Good start!

 

Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 44 pulses NC USA

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am