Cpnhelp.org - Chlamydia Pneumoniae Treatment

So here I stand at the threshold of one year on the site, having completed 13 purgatory pulses and still bitching about the fact that my most painful ailments are still with me. But what have I got to bitch about, after all I now have a pratically full head of hair, my sinuses are much less painful, I can breath better and I at times enjoy a couple of tummy pain free days in a row. Added to that I constantly remind myself that I have been suffering from a Cpni infection since my early childhood, and it has persisted all my life, so its not going to go away in 9 months...

Maybe the reason I'm bithcing is because this is the post pulse period and I often feel worse in the first four days after the pulse than at any other time. (Last pulse being the exception) These exceptions are so hard to take, I start thinking this is it, I have turned a corner... no more post pulse fall out, but no, it was just kidding... Its back.

Another thing that has puzzled me is the fact that Ella and I seem to be catching cold after cold at the moment, they don't last long, which is great but it wears you down to be ill every month or so. It particularly wears Ella down as she gets very fatigued when she is unwell and all her functions go backwards, not badly but enough to make it more difficult to do her work. I expect that our immunei systems are being overhauled by the CAPi and is feeling the effects.

To keep you updated with what is happening with Ella, her right hand is still not good, she is quite staggery at the moment and she is also struggling with things at work. The MD has always been uncomfortable about having her back, and he has engineered a new position for the two people who are doing what Ella used to do (previously to her last relapse) to apply for with added responsibilities. Needless to say Ella is not prepared to take on extra responsibilities at this present time so she is unable to apply for it. After an initial preriod of despondancy and confusion, she has once again bounced back and is making it plain to them that she knows what they are doing and laying out a few different options for some sort of continued employment. She is also keeping detailed records of what is going on and making sure that what she says is taken as she meant it and not as they would like to hear it, so that in the future, if she feels like it she may be able to take her case to the employment tribunal. The organisation she works for is fully funded by the Arts Council of England, who have a very prominent disability inclusiveness policy and it would be very bad form for her organisation to be seen to go against that policy.

However, she feels that the time has come to concentrate on her health and what she wants to do with her life. Luckily if she is careful with her money she will be able to manage on national insurance benefits.

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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyii, Azi MWF, metroii pulse. Zoo keeper for Ella, RRMSii, At worse EDSSii 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006